I don't want treatment

  • 6 replies
  • 168 subscribers
  • 681 views

I have been diagnosed with stage 1 T2b M0 N0 which I know is operable and also probably treatable with radiotherapy.

My family have been amazing but I can't tell them that I don't really want treatment. The thing is, I already have a disability which affects my mobility and gives me constant pain, almost every day, for the last 20 years. I'm tired and thoroughly fed up with feeling ill all the time. I've often said that 'my condition doesn't even have the good grace to be terminal!' My lung cancer diagnosis feels like a way out, at last. I don't think I'm suicidal but have agreed to talk to the mental health team through my GP and also through Macmillan. I don't feel depressed, anxious or suicidal. I just feel calm. Except for how my feelings affect my family. I know they want me to have surgery despite the best outcome being the same disability as I have now plus the reduced lung function and possiblity of living with even more pain, risk of a rib breaking and the fear of the cancer coming back. I just don't want any of us to go through all that. 

As I say, I am talking to mental health professionals, I just wondered what other people with cancer feel about this.

  • Hi Fiona

    So sorry that you have cause to be on here.

    Perhaps you need to defer your decision not to have the cancer treatment until after you have had the counselling sessions with the mental health professionals.

    In addition, you could also negotiate your treatment with your cancer team; for instance forgo the operation and just opt for the radiotherapy.. You could stop the radiotherapy at any time if you felt it was having a negative impact on your current health issues.

    My decision to have all the treatment that was offered was mine and mine alone.  Only you can make the decision regarding the treatment being offered to you.

    Whatever your decision, I wish you well.

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • I know in your position I would have the treatment as I wish I could have surgery but it is your body and your life. Think about it more and talk to your loved ones. Lots of love and hugs from me x

  • Sorry to hear u feel like this, but iv had this operation twice and didn't need any therapy afterwards , yeah I'm worried it'll come back but I do get counciling as I suffer from severe anxiety and borderline personality .hope you can stay strong abd do the right thing for you and speak to your family but just though I'd let u know not all cancers need therapy the operation is the most successful but hope u can work thro this .Tracy x

  • I understand your feelings.  The most important thing my children did when my lung cancer was diagnosed was tell me that they would support whatever decision I made.  While I did choose to have treatment, I wouldn't necessarily do so if my cancer recurred or if a new cancer was detected and my children are aware of that (I'm due for both a colonoscopy and a cervical smear this year, so it feels like I'm always being tested for one cancer or another).

    Is the radiotherapy you're being offered SBRT?

  • First I’m so sorry you’re here in this dreadful position on this nightmare rollercoaster of uncertainty and pain.  Maybe think about having Radiotherapy and if it’s no for you then talk through your feelings thoughts and decisions with a professional. I can relate to your feelings and feelings and your decisions. I’m sending you my thoughts, love, prayers and hugs to you and I want you to take good care love Yvonne xx

  • Hi Fiona

    I am not in the same position as you, but i do have incurable advanced lung cancer. 

    I do understand how you feel, and I think it is your right to have treatment or not. And I think it's important to be honest with your family. They should want what you you think is best for you. Sure, they may find it difficult, but they don't have to live with the pain.

    Good luck with the journey.

    Vivien