Hi Everybody, I am new to these forums after what has been a very unforeseen, sudden and shocking arrival into this scary and difficult world.
I've updated my profile with my story so far, but here it is as of now...
My mum (74) is in the process of being diagnosed with lung cancer, with what now seems to be secondary bone cancer / bone mets? We are awaiting a full diagnosis from lung specialists (Feb 2023).
My mum complained for some time about pain in her shoulder when at the dining table doing jigsaws (2021/22). This was diagnosed by her GP as 'frozen shoulder', with physio prescribed and a long road to recovery expected (Mid-2022). We now know this to be incorrect. She also had a pain in her hip (which we assumed was arthritis) which after x-ray showed to be clear (Oct 2022), so after blood tests and more GP appointments, we got referred to a consultant (Jan 2023). He did another x-ray and found what he suspected could be bone cancer in her pelvis (Feb 2023).
Mum then had an MRI and a CT scan (yesterday) which confirmed bone cancer in her pelvis, but also in her shoulder after all, however it also showed a large tumour in her lung, which they now think is the cause of the cancer elsewhere. We are waiting to see the lung specialists and I believe get a biopsy, and go from there.
My mum is supported by my dad and me. She lives at home with my dad, sleeping in our dining room with pain relief (upped from Codine to Tramadyl to now morphine). She unfortunately has lost all mobility due to her pelvis and shoulder. 2 weeks ago as I write this she was sleeping upstairs.
I am feeling mixed emotions, from grief, sadness, anger, frustration, but above all, love for my mum and dad. This disease is trying to rob my dad of his wide of over 55 years, me and my brother of our mother, and my 2 young kids of their grandmother.
The Macmillan website has been of some comfort to me during this very difficult time. I've never experienced anything like this before in my entire life. You are all incredible.
Hi Mav I am so sorry to hear about your mum. It is terrifying when someone we love is diagnosed with cancer. I am sorry to hear that mum was mis diagnosed for so long. I hope it won’t be too long now before mum gets a full diagnoses, and a treatment plan.
I can see you have also joined the carers groups which is good, and you can always call the Macmillan support line on 0808 808 00 00.
