So very scared- husband diagnosed before Christmas

Former Member
Former Member
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Hi

Both my husband and I are 46, we've got an 11 Yr old son. He was diagnosed as having lung cancer a few days before Christmas with nodules in his kidneys and lymph nodes in his central chest. They are also worried about his neck and head/ brain with a further ct scan booked for this week with lung function test. He had bronchoscopy last week.

He's had a couple of days with very little sleep and is in pain.  I'm worried about his heart too

I'm so very very scared as it doesn't look good so far from checking Macmillan sites info and the NHS.

I can't sleep tonight and there's no one to talk to. I'm downstairs on the sofa and can hear him cough occasionally. What can we do?

  • Hi, Looks like you are being pro active and willing to find out anything that can help and inform. Firstly I am so sorry you find yourself in such a devastating situation at any time of year but particularly now. As the day progresses there maybe support lines you can phone. As still a bank holiday that may not be the case. There are other cancer forums where members can offer support better than I can and as the day breaks I hope your post and responses here start the ball rolling as you reach out. As for this moment in time. You will be tired and emotion and no doubt feel lost. I have had breast cancer treatment last year and awaiting some important scan results. Waiting is the worst and most difficult of times. Your care and love for your husband and son have been heard by me and know doubt many others as dawn breaks. There will be specific info tht comes your way. Try to note it down as you read it. Keep a book or file separate and date for entries and source so you can return to important more specific areas tht apply as the diagnosis and further results come through. Your head will get muddled with it all and I am sure overwelmed now and in the coming days/weeks. Hope you have good friend and family support. If not you have made a good start to help all you can by reaching out. Sending my very best wishes to you your husband and all the family. I hope he and you do manage to get some rest and his pain relief kicks in. Seek medical advice as soon as is pain is not managed and shout up and make yourself heard. You are your husbands most valuable asset and doing your very best. Well done. 

  • Hello   welcome to the group, but sorry you find yourself here. Being told a loved one has cancer is terrifying. You have some idea of your husbands condition at the moment, but all the tests he will be having now will determine what type of lung cancer it is, and what stage. Once all these tests are back the oncology team will meet to discuss what treatment your husband can have. Waiting for all of the tests to come back seems to be the longest part, because you just want to know so treatment can start. There isn’t much you can do at the moment, but wait, as hard as that is.

    You have made a good move by joining the site and this group. We all know how you and your husband are feeling right now, as we have been there ourselves. Sometimes just putting your thoughts and feelings into words and hitting that post button, does help, knowing someone here knows how you feel. 

    You can also call the Macmillan support line and talk to someone there. They are open today, and every day from 8am until 8pm on 0808 808 00 00. 

    I was a similar age to your husband when I was diagnosed (2nd time around for me) and my youngest was 13. Macmillan arranged some counselling for her. She only had a couple of sessions, but she says it really helped her. I also made her school aware of what was happening, and they were very good. 

    I know it is hard, but please know there are so many treatments available for lung cancer now. People are living very good lives on treatment than ever before. Hang in there x 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Hiya MrsChooChoo

    A very worrying time for you, I understand why you can't sleep. Firstly you need to take care of yourself, you can't help anyone if you become poorly yourself, stress and depression are the hardest things to deal with. Mental health is important, we are a friendly bunch in this forum and although we are not medically trained we do understand and can point you in the right direction yo get what you need. Remember you are not alone. If you tap on my avatar you can read my journey so far. If I can offer one piece of advice at this stage it would be don't Google anything, the information is often out of date and incorrect. Your consultant and MDT are best placed to know what treatment is best so listen to them and ask questions lots of them. For now talk care 

    Sending you a big hug and message if you want to chat

    Donna

  • Hi there , welcome to the group but sorry you find yourself here . I think the other members who have responded have said it all really . The waiting around for a decision on treatment plans is the worst time , you’re still in shock and overwhelmed by the news so it’s understandable you feel like you do … i know how scary it is ( I was diagnosed sept 22) and you’re forced to enter the world of cancer terminology , tests and treatments … I reached out often to this group who were amazing , to the macmillan support line and to my local Maggies … just knowing you can talk to someone who fully understands helps and as Hamhat said stay away from google and research more on this or the Roy castle sites for your information but listen to your MDT/ oncology teams more as they have the answers to all your questions when you’re ready to ask them … sending much love , Elly x