Hi,first time on here. I was diagnosed with incurable lung cancer June 2020,had lobectomy sept same year. Had 2 rounds of chemo,but had to stop as my body could not take it. I have been told I have non active terminal lung cancer ( squamas),it will end my life,just not sure when . Prognosis was 3-5 years. Am I grateful to be alive,yes I very much am,but I am having great difficulty in coping recently,not sure why. I feel selfish,as I still see new days,but just struggling at the moment. I talk with my husband,but feel it is not fair to put the strain on him,would be nice to speak to people who understand my emotions.Thank you
Hi Cooper, welcome to the group, but sorry you find yourself here, in the club that no one wants to join.
I completely understand what you are you feeling right now. This awful disease really does play with our emotions. It is hard sometimes to speak to our loved ones about how we are feeling. When I was first diagnosed as incurable I felt so guilty because I knew I was hurting my loved ones. Completely irrational I know, because I knew I wasn’t hurting them intentionally, but I couldn’t shift the feeling of guilt.
I think the best thing I was able to do, was learn that I can live with this disease, even though I am incurable, I am still living a good life. It is a different life to the one I had, but it is still good. Also not every day has to revolve around cancer. There are some really nice days, mixed in amongst the not so nice.
There is another group here in the online community that you may want to join. Living with incurable cancer forum - patients only Is a very supportive group for people with incurable cancer. There we do have serious discussions about our condition, but we also have some more light hearted discussions too about our every day lives.
Come over and have a look, you will be made very welcome x
Hi there. I found your post so inspiring even whilst it was very sad. 3-5 years - you could do a lot, so I hope you’re planning some lovely treats. Keep going! You’re stronger than you realise..
