Just found out today got lung cancer

FormerMember
FormerMember
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Hi everyone. I'm not sure I know how to do this chat thing but lets give it a go. I was told today I have 1 isolated tumour in my left upper lobe. Consultant says its adenocarcinoma, no spread thank god. I feel quite surprised because I feel quite well. In fact I just joined Slimming World because I want to lose weight. Bit breathless but thats post covid. In fact if it wasn't for the chest x-ray I had when I was in hospital with covid I would not have known I had cancer... so thanks covid! Now got to wait for appointment with Thoracic surgeon to see about having part of lung removed. I feel generally calm but I may be kind of denying my situation a bit. Anyway that is my introduction to me. I'm 68 and live alone but my son and family live 10 minutes from me so got good support. Glad to have found you guys. Best wishes to you all

  • I’ve been recently diagnosed with a slow growing lung cancer only due to being diagnosed with another cancer, waiting on radiotherapy for first cancer already had surgery on first cancer and waiting on surgery on lung I’m 46 

  • FormerMember
    FormerMember in reply to Annie1974

    Hi I've just been diagnosed with stage 3 lung cancer but I haven't had any treatment yet because I've still got to have a pulmonary function test tomorrow a heart scan on Friday and an mri on my head to rule out that cancer has spread to my head, when I've had these tests done then I will know what treatment I will be having, best wishes to you all

  • FormerMember
    FormerMember

    Hi loveheart21, I was told on Tuesday that I've got stage 3 lung cancer and like you this is the first time I've joined a forum, I hope your treatment works for you x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Shraleigh, I'm not much of a forum or social media person, but I am glad to have found this forum as I am not sure how I feel. In one sense I feel a fraud because I feel well, got a good appetite and haven't lost weight, in fact I just joined Slimming World to help get my diabetes under control and get match fit for surgery. But I also feel almost guilty to bleet about my situation because I've read posts by people here who are going through bigger tests than me. My adenomacarcinoma is just in my left upper lobe and nowhere else and hopefully will be taken out soon. What is strange is that I keep having these irrational feelings I want to burst into tears, its like waves washing over my mind...but I can't cry, well not for myself. I can tear up for others but not for myself. I'm guessing what I am feeling is normal. I'm yet to get an appointment to see thoracic surgeon and know I'm facing a lot of pre op tests. I have part blocked coronary arteries which might slow things down. Well said I didn't want to bleet but just done that! Shraleigh do hope you have good support and get the best of treatment. x

  • Try not to feel bad. It’s natural. Hard habit to break.  The tears will come.... let them out! I feel like a pile of nonsense sometimes, still I tend to have a meltdown in private as I don’t want to burden anyone  take care and nag you’re consultant and nurse. They are there to help xx7

  • Hello, I had the same cancer as you. Surgery april. I didn't need chemo or radiotherapy as it was contained within the lobe removed. I am very thankful for that. I started phased return to work a few weeks ago. I am in your age bracket so best advice is stay positive, keep active after surgery as much as you can and take pain relief. I thought I was invincible but have a variety of options depending on what your day is like. Sending positive thoughts to you.keep us posted

  • FormerMember
    FormerMember in reply to Realshannon

    Hi Real shannon that is very reassuring to hear. I was worried about prospect of chemotherapy after surgery but your experience gives me hope.  I'm doing what I can to get, as someone called it, match fit. Lose weight and adopt healthy eating and more exercise and doing deep breathing exercises. I read some hospitals have prehabilitation programs to get patients ready for surgery but unfortunately haven't found any in North Tyneside so far. So doing it for myself. I am a born worrier and am trying to chill out, however having had superbly fast diagnostic process I am anxious about how long the path to treatment might take, given media reports about awful wait times for all sorts of treatments especially surgery. I just want the surgeons to get in there and take out what they need to and prevent spread.  Still early days so I must be patient and have faith in local NHS of whom I must say I have had such good experiences.

  • No problem, you are welcome! I wouldn't worry about delays as cancer protocol kicks in. Almost everything for me was done within two week timeframe. I know different areas may vary but you are a high priority. All went so quickly once admitted, it's fine. Once home it changes because each and every one of us have different homes, for example, we live in a very old house and our stairs are steep. So it was harder than physio in big standard stair exercise. I came home with no real pain relief and didn't worry but as it was weekend I came unstuck! Make sure you have oramorphine and anti sickny, I also had naproxen, paracetamol. Every day is different, you won't need strong stuff every day. Do a set amount of exercise after, it helps your lungs and mucus, I did so many laps of garden. I was given a spirometer, brilliant, used every hour for a while. Ask me anything, you have got this! X

  • FormerMember
    FormerMember in reply to Realshannon

    Thank you so much, I am feeling so much better for knowing that you have gone through similar situation. I have a sort of rather unwound spiral staircase but its actually easier to manage than straight up staircase, plus it has iron grab rails both sides. I know I have a load of cardiac tests to face before op stage and worst of all the one I hate most, chemical stress test, but you are right, I have got this! x