Radiotherapy and immunotherapy

Hi Mijod,

Welcome to the group. I've been on immunotherapy for 12 months but, like you, my last few scans have shown slight progression. Initially they were going to stop the immunotherapy but the drug company (I'm on a trial) agreed I could stay on it alongside the radiotherapy. I was so happy to hear this news. I haven't heard anything about it being very controversial?  Today was my 5th session of RT and yesterday I felt a little tired and nauseous but otherwise fine. I've just been advised to rest and keep hydrated.

I'm told the RT is going to boost the immunotherapy again to get on with its job. The consultant explained it was just a blip as the immunotherapy has done a good job so far in that there is no spread to anywhere else. 

Please let us know how you get on.

I wish you well.

little-fi 

Hi Little Fi, dont often post on the forum these days but often wonder how you are doing.  Hope your RT kick starts the immunotherapy again.  Keep well my friend.  From my point of view I seem to have dodged the bullet and the surgery and chemo did its job.  Wont say I am back to normal whatever that is but living the best I can and grateful for all the treatments and so far so good.  Take care of yourself big hugs.

Mo

Hi Little Fi.

Thank you for your post...can I ask where the RT was targeted and how was the RT given to you...thru beam...injection?...it is so good to be able to talk about this with someone ...during covid this has been hard to do. I do hope you are keeping well and wish you the best of everytihng going forward.

So lovely to hear from you Mo. I'm really pleased things are going ok for you at the moment too. I hope your Sherman's behaving himself!  

All the best to you Mo.

little-fi xxx

Thanks Mijod,

My RT is targeted through beam I guess. I just see the green line on the machine and they adjust it to fit in with the  tiny tattoos they made for precision markers.  I'm a bit ignorant of the exact details as I don't ask too many questions. It's in my lower right lung and 2 nodes in the centre of my chest. I finish RT on 23rd November and feel optimistic it will do its job.

Have you got the details of how your RT will be administered and are you on Pembrolizumab?

Covid really has been tough for everyone but particularly hard for cancer sufferers as so many departments just closed shop! 

I hope you've got a good support system in place now. 

Keep strong,

little-fi xx

Hi little-fi.

Yes I am on Pembro...and nothing as yet has been decided if I will proceed with RT as well...it has just been thrown at me after the scan ...just waiting for the full scan results. My wife is a wonderful support for me. Can I ask if you had any side effects from the RT and were you able to live a normal life thru the RT treatment.?

Hoping all will be great when you finish RT later this month ...yes times are certainly hard for all but as you have said extremely tough for cancer sufferers..take care Little-fi xx

Hi Mijod, I had an operation a couple of weeks ago to open up my airway. I was unable to breathe in or out of my nose, smell or taste so I'm still getting over the side effects of that coupled with the very mild effects of RT so far!

Fatigue comes and goes but plenty of rest and listening to what your body is telling you is the order of the day. My team advised that I take time off work so no added pressure there. I haven't experienced any inflammation of the eosophagus or mouth ulcers yet, but maybe I shouldn't speak too soon. 

I hope you don't have to wait too long for your scan results, often the worst bit is the waiting!

little-fi xx

Thank you for sharing little-fi....I will be thinking of you xx