New and so scared

Hi Elsie, yes it is a shock and it's horrible. I had a slight pain in my shoulder and very slight tenderness in my ribs. It wouldn't go away so got a doctors appointment sent me for an x-ray and PET scan. They found a tumer and nodules on the wall of my right lung. They operated but the cancer is to far advanced so it wasn't a success. Got to see consultant tomorrow to see what treatment there is for me. My whole life has changed, and I'm scared?

It's just an awful shock when you feel fine and then we're told this life changing news. Let's hope we both get good news tomorrow and that we get the best treatment available xxx

Yes let's hope so, I will fight this  easy to say be positive xx

Hello Elsie Slayer and Muffin Break - "welcome" to the club no-one wants to be in - but we'll do our best to support anyone. First of all, from my own experience, in the first few weeks post diagnosis things either seem to go at breakneck speed or seem to take an eternity. I would suggest having someone with you at initial consultations as they may take in more than yourselves. Also write down any questions you have prior to meetings as I am sure you will forget to ask something. Once you have more of an understanding of what treatment regime you are on there will be people on this site who can give you practical advice. Don't go Googling for info as it is generally out of date and not always from reliable sources. The next thing will obviously be who do you tell, and when. Some people (me) like to be open about their illness, others don't - there is no right or wrong way, only what is right for you.

Hope this helps in some way, and feel free to post when you have anything to discuss, or even need a general rant at the world

Hello Elsie

looks like our road here is similar. I know the drain gave me a lot of relief but it is such a shock. I’m still not quite sure this is me in what feels like a pantomime still but it does get easier. Please don’t google..especially the pleural effusion stuff as I found most of that to be incorrect. Starting treatment felt like something was happening so hope you get a plan of action soon too

take care

sylvia

Hello Muffin break, you’re in the right place as this is such a shock I find nobody else quite understands the emotions we all go through.

take care

sylvia

Hi Sylvia, thanks for replying. You're the first person I've 'met' who also has the drain. Mine has been in for 6 days now and my breathing is great... It does give me a little discomfort ...like a trapped wind feeling or a bit bubbly feeling under my boob...very wierd.

I've found out I'm starting in keytruda in the next week or two and I'm so eager to start treatment. What are you having and how long have you been on the nasty journey?

Xxxx