Newly diagnosed with incurable lung cancer.

  • 70 replies
  • 169 subscribers
  • 12942 views

Hi everyone. 

  • FormerMember
    FormerMember in reply to FormerMember

    Jinca look at care oncology clinic in Harley st. It is more hope xx

  • FormerMember
    FormerMember in reply to Muffin break

    I thought I had an allergy to some new seeds I was eating!

  • FormerMember
    FormerMember in reply to Muffin break

    Hi Muffin, I'm 3 week into a diagnosis of a primary lung cancer. Although not SCLC, I have secondaries on my T8 vertebrate and brain. All are small and localized. I'm 34 years old without a history of smoking. I am treatable but incurable. 

    Like you, having a hard time processing. I'm sorry for your shock and situation. What I can say is I'm trying to reframe my thinking, there are joys to be had. I've taken a small break away and gone walking for example. 

    Best wishes, Manda 

  • Hiya sorry just seen your reply. Yes it's still hard to take it all in but getting there. And yes reframe your thinking and take short breaks away. I'm seeing consultant today to I find out what treFingers crossedment I'm going to have fingers Fingers crossed keep in touch Manda x

  • Hi muffin

    Good luck for today at least things are moving and you will see what treatment they are going to offer you. I will be keeping my fingers, toes and anything else crossed for you. Let me know how you get on. Love Jean xxx

  • Hi Sassypink

    I've just seen your post and you are on the right place to keep you uplifted. You are so young to have such a nasty disease but you are right about short breaks they do you the world of good mentally. I have SCLC and. NSCLC so I hit the jackpot and I have come to terms with I have a short time left as there is not much treatment out there for SCLC. Have fun live life to the full and enjoy doing it. 

    If you have read all the posts on here you will see how supportive everyone is and you also get loads of information as well.it's hard being told you have cancer but you will find your own way of coping with it, do you have a family with you being so young. I am 64 and I wanted to see my grandchildren grow up and marry and have a family but I have now set my sights on collecting a bit of old age pension haha.

    Keep smiling and keep in touch with everyone even if it's to have a good moan. Sending hugs and kisses love Jean xx

  • FormerMember
    FormerMember

    My wife was diagnosed last week with lung cancer it’s also spread to thigh shoulder snd spine, we went yesterday to see  oncologist to find out what after treatment plans were available , she has the NSCLC type of cancer and something called EGFR mutation, I’m a little more hopeful than before and she will be starting on a drug called osimertinib which is orally administered. 
    I am trying to say positive for her sake and the kids, and I really hope it works she starts today. 

  • Hi Aston

    That's better news than you thought earlier in the week, now you have a positive plan to go by now, just remember if this doesn't suit they have more up their sleeves to try until they until they get the right one. Fingers crossed this one is going to be suitable for your wife and you can start living again as a family. Remember never give up there is always hope out there. Hugs and kisses to you and your wife and wish her all the lucky in the world from me. Jean xx

  • FormerMember
    FormerMember in reply to GrumpyNana

    Hi Jean

    Thanks, it’s been a tough month, and yes it’s much better than I could of hoped, we are lucky that we have family in the medical field and we’re able to send our results to them in US and the recommend treatment was the same so that’s also given her some confidence. 
    anyway I’m grateful for all the support from family and community and Macmillan who have been excellent.  
    thank you all sal xx

  • Hi Sal

    Don't forget to use the forum to keep us  informed on yours and your wife's progress we would all like to hear that life is going back to normal and you are enjoying the family without as much stress as before. Good luck on your future journey in life and remember LIVE it. Love Jean xxxx