Hi everyone
I can’t quite believe I am here in any capacity and I am sorry any of us are. Last week we found out my young husband has lung cancer after having 4 litres of fluid removed from his lung.
it is like a bad dream every day I wake up and cry most of the day, we have a 5 year old son and I have two kids in their early 20s that he raised for the last 15 years. Life is so cruel.
I can’t even imagine what is going through his head and I am trying to be positive for him.
the doctor gave him a prognosis of 3-5 years but this was without any further tests like MRI etc and without even starting any treatment. The other doctor said he shouldn’t have discussed times at all but is this the best case scenario? Has anyone got a success story to share or am I asking too much.
I lost my dad to cancer and thought I’d never experience pain like it well this is worse. A young man who is the love of my life and the father to my children. This is no age.
wjat are we supposed to do?
What doctor is the best for this in London. How are we supposed to be?
Hi DawnieAP22
So very sorry that you have cause to be on here.
Although this must be a terrible shock, a lung cancer diagnosis is no longer the automatic death sentence it once was, Plus an initial prognosis without a treatment plan of 3-5 years is amazing; the doctors must believe the cancer is very much treatable.
Youn are right, 35 is no age to have lung cancer. However his age will go in his favour, especially if he does not have any other underlying health issues. The younger and fitter, the more aggressive they can be with the treatment plan..
You need to prepare yourselves for a battery of testing and scans. This process can feel long winded but it is very necessary in order to determine the very best treatment plan for your husband. Make sure he goes for every test and scan.
You need to be each others support, so talk/cry about this together. Going foward, you will both need to dig deep to get through this.
There are many of us on here who have been successfully treated or are living long happy lives with lung cancer. I completed my treatment in 2011, and so far have had no signs of the cancer returning.
When you know the type of lung cancer and/or know the treatment plan, please let us all know as there is a wealth of experience on here.
I wish you the best possible outcomes.
Kegsy x
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Hi, I hope my experience will give you some hope! I was diagnosed with lung cancer in September 2015 at the age of 36, my prognosis was 2 months and 2 years, I also had cancer in two other places. I started chemo pretty much straight away and had 4 cycles. I was then given a break of 6 weeks to allow my body to heal before next rounds of chemo. I then had chemo until august 2016 at which point the chemo had started attacking my kidneys so I had to stop! I was then put on a Tablet chemotherapy, side effects of which are so much less, and have been on them ever since. My cancer is now only in my lung and has shrunk considerably. It’s not an easy ride but try to stay strong and positive xx
Thank you for your story and my heart goes out to you, you are very brave and strong.
My husband pain has got worse and we are still waiting for a treatment plan.
he was meant to have an MRI this morning but couldn’t lie down due to the pain so I got him admitted to local hospital so they can help with the pain following his operation to drain his lung. I guess without an mri a plan can’t be made,
I am so scared now that the pain increase is an indicator of worse news. I want him to stay positive but also I can’t imagine what is going through his head.
I also have bad feelings about it but I am trying to dismiss them
thank you for replying
Hi, I was in a lot of pain before I was diagnosed and was taking morphine tablets that my doctor had prescribed for me, hopefully now your husband is in hospital they will be able to manage the pain and his mri will be completed. For me every worse thought was going through my head, mainly that I wouldn’t see my children grow up, my advice to you is to stay strong and keep being positive but mostly let your husband know that you are in this together. Believe me without my husbands support I don’t think I would have coped x
Thank you
I know that’s what he is thinking, we have a five year old son and he has said he is so sad to think he won’t see him grow up. It’s breaking my heart.
they have swapped his meds as the morphine wasn’t working for him, he said he’s in agony across his chest and back.
I feel like it’s been so long since diagnosis and why haven’t they got the molecular results back yet! They said they can’t give a treatment plan without them.
can I ask where you were treated?
Hi
we had his treatment plan today even without an mri,
We are devastated, the doctor said it has spread so much in a few weeks in the fluid in pleural and that he can’t have surgery or the gene targeted drugs. He is to start chemo in a few weeks but the pain is so bad, he asked her how long he had and she said 3 months with no treatment and 6 months - 2 years with treatment,
I can’t believe this,
many stories of hope with similar treatment plans?
Please!
Hello Dawnie
i was diagnosed almost 2.5years ago at which time they believed it could be cured as was contained in my lung. Six months later and with a full course of radical radiotherapy I began to suffer pain and by the end of that year I could hardly bear the pain. Long story short it was found the cancer had spread to my pleura. We were devastated. They offered immuno which works so well for many. It worked for 5 months then stopped. Devastated again. Since then I’m on my second clinical trial. The first worked but sadly was too toxic so had to be stopped. Began second trial late Feb and that’s working well. As someone said, it’s nit a sprint but a marathon and with so many new treatments being found there is so much hope. In the beginning I was offered the Guardant test which is a blood biopsy and through this I was able to access the trials. Keep asking and researching and I hope you will soon find the way forward. Xx
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