Hi all I wonder if anyone can help, Mum is 76 and has severe COPD, CLL and Osteoporosis she lost a lot of weight since October last year we are looking at about 2-3-stone and also lost alot of muscle mass.
She previously has Lung Cancer about 6 years ago and it was removed and no further treatment was required.
The doctors have just done a CT scan and have said that there is nothing suspicious and everything that they have found is in relation to all her other health problems. The gave me the report and in her right lower lung lobe there is a 1cm nodule mentioned, my worry is that when Mum was previously diagnosed her nodule was only 9mm then went to 16mm and when removed was 2cm.
She is tried all the time and I am really worried that the doctors have brushed off the nodule as nothing to worry about.
I'm just worries as she seems to be wasting away in front of me.
Thanks Natalie
Hi Natjoel1970 I am sorry to hear about your concerns for your mum. My Dad had a CT scan which showed a nodule, and we were told the same, that it isn’t anything sinister. I don’t know how they can tell the difference, but they can.
I must admit I did not know what CLL was, so had to look it up, and one of the main symptoms of this is unintentional weight loss, so maybe it is more to do with that ? I don’t know what medication she is, but it could be something to do with that.
You can always phone the Macmillan support line on 0808 808 00 00 and speak to one of the nurses there to try and get a better idea.
Take care
Sorry I forgot to say, if you are not happy with the ct you can always ask for a 2nd opinion. Your mums oncology team or her GP can sort that for you.
Chelle
Something i came across while researching tumor growth was calcified nodules which MIGHT explain one way that doctors can tell if a nodule is benign.
A quote from cancer therapy adviser "Calcification of the nodule is one of the important radiological signs of benign nature, but only when the pattern is characteristic."
"Diffuse, central and laminar pattern suggests benign lesion, while popcorn pattern of calcification suggests hamartomas."
Thank you Viking, that is really interesting. I just know that for my Dad they said straight away there was a nodule but it isn't sinister (thank God) but for me they could tell on a xray that it was sinister. I have heard people speak of calcification but have never understood the importance. That is a very good explanation so thank you for sharing that.
Thanks Chelle she has had CLL for 6 years now and weight always steady but I will ask next time she has an appointment thank u x
I’m 72 and was just diagnosed with early stage CLL - lymphocytes reading below 7 so no treatment except for regular blood tests - condition seems stable except that I feel more tired than normal
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