New Diagnosis

FormerMember
FormerMember
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 Hello,

My husband was recently diagnosed with stage 4 non small cell lung cancer.  His initial presentation with mid December when he was acutely confused and a scan identified a brain tumour and a nodule on his lung.  The brain tumour was removed on Christmas Eve and he has made a great recovery.  In January we were advised that the brain tumour was a secondary and that they couldn’t identify where the primary cancer was so we were referred to the Cancer of Unknown Primary team.  A further scan showed that the nodule on the lung had grown minimally but that a new mass had appeared on his right adrenal gland.  We are now under the care of the Lung Cancer team as this pattern of spread is consistent with a lung cancer.

My husband will begin chemotherapy and immunotherapy this month.  Whilst I was very keen for a prognosis he did not want one and was very clear that I was not to be told separately.  I am a person who deals better with things when I have a plan and although prognosis is not an exact science and time can be longer or shorter I am really struggling not having a clue how long he has.  Anyone else in a similar situation?

Thank you

  • Hi Buntz

    I am very sorry that you have cause to be on this site. It is very positive that the brain tumour op has been successful and Hubby has made a good recovery.

    No-one can accurately predict how long someone will survive after cancer treatment; it really is the classic 'how long is a piece of string' question. There are many on here who are living long productive lives with incurable cancer.

    I am sure someone will be along soon to who can advise you of their journey on the chemo/immunotherapy combo.

    I wish you and Hubby the best possible outcomes.

    Kegsy x.

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • FormerMember
    FormerMember in reply to Kegsy

    Thank you x

  • FormerMember
    FormerMember

    I am sorry to hear of your husbands diagnosis, but he is now having treatment and his operation was successful. The early months of uncertainty and understanding the treatment plan alongside coming to terms with the diagnosis are hard. I hope you have someone to support you. Many of us have updated their profile to reflect our personal cancer experience and is accessed through the icon by our name. Have a read of some of them and you'll see a range of treatments based on the type of lung cancer. I was diagnosed in 2016 with NSCLC and have had radiotherapy,  chemotherapy and two different biological treatments.

    Ask questions of the group, there will be someone who can help or support.