New here Pancoast cancer

Hi fluffy12 and welcome to our little corner of the community. I am so sorry to hear about your husbands pancoast diagnoses.  There seem to be a few people in the group at the moment with this type of cancer, which is unusual, as it is a rare cancer. 

Radiotherapy does build up in the body over the coming weeks, so the side effects do increase as time goes on.  I am not sure why he is becoming confused though. Definitely mention this today when you discuss his meds.

If you have any concerns at any time whilst he is going through this treatment, you can call his Oncology nurse, they are always happy to help. Mine has an answer machine so I can just leave a message and she gets back to me. You can also call the Macmillan support line on a free call number 0808 808 00 00  - 7 days a week from 8am til 8pm.

Supporting a loved with cancer is the hardest thing to do.  I am glad you have found us here, and hopefully others will be along soon to chat with you too. 

Take care

Hi Fluffy12,

I have pancoast cancer and have had 4 chemo and 6.5 weeks of radiotherapy treatment at the same time which finished just before christmas and I started immunotherapy 3 weeks ago.  I'm sorry that your husband has this and is not feeling well during his treatment.  As Chelle says if you have any questions at all contact Oncology or MacMillan, I found both were absolutely brilliant and if something isn't right, they are on it straight away and happy to listen.

If you have any questions, feel free to ask I'm happy to answer if I can.

Let us know how you get on today with the diet and meds

Karen

Thank you for your replies . Unfortunately things have taken a turn for the worst yesterday we went for hus radiotherapy I could see he was really struggling . After the treatment we had an appointment with a Dr from DG _ palliative care extra to talk about his meds. I've noticed the last couple of days he's been confused alot . Also throwing up after his treatment . So I thought it was the morphine making him confused.

Anyway another nurse came in and had met Bob a few weeks ago she said they were going to keep him in hospital as he was looking very ill . So it's was all arranged very quickly . And to be honest I felt relieved as he's so weak and confused.. but he was really angry with me saying I was ruined his chances of getting chemotherapy. 

It's all so heartbreaking I took some things to the hospital and the nurses let me see him as he was in a room on his own . He knew who I was I brushed his hair and sat with him . They thought maybe he was dehydrated so that could have had something to do with him during so I'll . But today they said they are doing a CT scan to see if it's dorsal to his brain. 

I'm totally shocked and this is all happening so fast I'm so scared I can't stop crying I feel useless .

I'm sorry for  being so emotional . I've never had to deal with anything so life-changing . X

Sorry for the spelling !

Hi fluffy12. I am so sorry to hear this. I hope you have someone with you for support through this. 

It sounds like he has a good medical team looking after him, and I am glad you can visit him.

If you need someone to talk too, please call the Macmillan helpline for support.

Take care 

Hi Fluffy,

So sorry to hear that your husband is having a really tough time.  I'm thinking of you both and really hoping that the hospital can ease some of these issues and he'll be a lot more comfortable and you'll be a lot more reassured.

Keep in touch when you can.

Karen

Supporting loved ones is traumatic and going through any life changing event is stressful, especially a cancer diagnosis, seeing the physical and mental impact is so hard. I am not surprised you are feeling emotional. I am glad that you have a team at the hospital who are looking out for your husband. Remember that you need support too, Macmillan and the Oncology team are there to do just that and I hope you have someone who can be strong and positive for you, as you are trying to be for your husband. I feel for you and am thinking of you. 

Thank you for your support. But unfortunately my Darling Bob passed away on Monday . I dust thought I'd let you know. I'm beyond sad and distressed . . I wish you all well in the future ️

Hi fluffy12 I am so very sorry to hear this.  I know it is very early days for you, but when are you feeling up to it, there is a support group here for people who have lost loved ones. bereaved-spouses-and-partners-forum

I really am terribly sorry, it all happened so very quickly for you, you must still feel in shock. I hope you have support at home. 

Take care x 

Hi Fluffy,

I am so sorry to hear this.  Thoughts are with you and family.  I do hope you have support and are not alone.

Karen x x