Help

Hi Greengirl, I have just replied to your first post. Hopefully you can see it?

Hi

Yes thank you I saw your reply. Can I ask if you know if the medics refuse to try any treatment  say in the case of a patient being stage 4 on diagnosis?

Some times I read that a patient has widespread metastases and is treated while other times a patient has less disease and is told there is nothing more to be done.

Thanks

Greengirl

Treatments can depend on a persons well being. If they have any other health issues they may not be offered chemotherapy, but may be offered radiotherapy only.  What I can say is there are many people here, who have metastatic cancer, and have had or are a having successful treatment. The oncology team will try everything possible for their patient. 

I myself have been living with cancer for over 10 years, and have incurable but treatable cancer in my lungs for the last 6 years.  If you click on peoples user name, or picture next to their name, it will take you to each persons profile page, where you can read their individual story and the journey they have been on. 

I  have stage 4 lung cancer. I'm 53 and healthy. I was diagnosed in october and have just finished a x4 3weekly cycle of chemo and immunotherapy. The scan showed it has significantly shrunk everything.  And i can now continue with the immunotherapy for up to 2 years.. again i am incurable but treatable. But like what has been said you need your results to make a plan and the waiting is terrible but a necessity. Imagination and google aren't good, so try to stay calm.

Xx

Thank you Hollsmolls

Xx

This is the worst time - waiting for the first results.  Once you know what the situation is, and the treatment plan, it becomes less fraught. After you have been on your treatment plan for a while they will take a new scan to see whether the treatment is working - at this point the waiting for the results is known on here as scanxiety.  What you are going through at the moment is normal, terrible but normal.  Hang in there GG - we are all here for each other.  Fill out your profile and update it as you go along.  It helps to look at others profiles, as SiT said, you will see you are not alone.

Hi MazLC

Don't know when I'll see an oncologist. Just read that you can die in less than 7 months with no treatment (and even with treatment many don't make 12 months) My head is swimming.

I send you all best wishes

Greengirl

Hi Greengirl.  Somebody is sending you for these tests, so perhaps ring the number on the letter that you got and ask when you can expect to see someone to talk through the results, or ring your GP and get him/her to find out.  We can all google our symptoms and wind ourselves up with what ifs but it doesn’t help - you need answers to what the scans are actually showing, not what you think is going on.  My GP was incredibly helpful at the beginning of my cancer journey when I felt nobody was responding to me.  I hope this doesn’t sound insensitive- it is not meant to, I just know how I felt until I got my diagnosis.

Hi Greengirl.  Every new “suspected” cancer patient is put on a pathway where there are targets of 62 days wait between the date cancer is suspected and referral sent, and the start of treatment.  There is also no more than 31 days from when treatment is discussed and treatment starting.  You have already started on this pathway and have had your Pet scan, so your wait won’t be too long. I know your thoughts are all over the place at the moment, but the information that you are googling will only be making you feel worse. 

Evening

I never know where to write my questions. Do I have to start a new thread each time? Sorry.

Just wanted to say I have been told that mets have now been found in my hip which is causing me all the pain. Am seeing an orthopedic surgeon tomorrow about trying to stabilise the joint. 

Still awaiting biopsy. I feel So shakey 

When I eventually get some treatment will the chaemotherapy shrink the mets? 

Thanks

Greengirl