Scanxiety again..

Hi, yes I know what you mean, waiting for results.

I am on six monthly scans now, it will be two years since I finished treatment for my lung cancer on the 15th December 2023.  Whilst all follow up scans have been positive, there is always that doubt when the next one comes up.  In between I get on with my life and most of the time forget about it, it is just when bloods and scan time approaches, it brings it all back.

The scan and cannula is a doddle now, I've done it so many times, but, as you say, it is the waiting time for the results.  My last scan was in September and I had to wait four weeks for an appointment with the consultant for the results, the average time I have to wait is three weeks.  

I'm sure your husband will be fine, as you say, he is eating well, weight normal, and he's feeling fine.

Best wishes.

Ann

My hubby was diagnosed stage 4 in March. Hes on a trial. The last scan showed cyberknife to brain, the met was a barely visable dot, still the 2 bone mets, but a fraction increase in lung tumour. Hence stopping keytruda & starting chemo.

The waiting is awful, but hes under the Marsden who have been amazing. 

I wish you well xx

I know how you feel , my 6 monthly scan is 15th of this month but need to wait till 20th of January before I see consultant for the results so again I need to wait 5 weeks for results . Waiting 5 wks for a scan for anything else isn't too long but waiting 5 wks to see if my cancer has become unstable and has spread is too long .

Take care Sandra

I feel for you. I hope all goes well xx

Thank you , I don't really have anyone I can talk to  about how I worry it becomes unstable and decides to go a wander , it's a recurrance but at last scan in June it's stable .

Take care  Sandra 

Hi if this is of any help, I had lung cancer 3times now in different lungs ,I've lost a third of my right one, 3years ago 2Weeks before Xmas I was told I had esofigal cancer,,lovely,great timing,never told the kids till a while after, I'm not allowed chemo or any more radiation as if had too much already so I spent a couple of years having a camera down my throat ,and I used to insist on sedation for that, anyway fortunately I got rid of it ,but now my next scan is on Dec 24 for my upper right lung 

But I've had so many I don't bother now ,I just love in hope that I last a bit longer .enjoy Xmas and stop worrying xxxx

Hi Paul .W , goodness you have been through a lot  , I feel , when  reading your story and others that I haven't had it so bad , yes I had breast cancer then lung cancer and now recurrance but I've coped ok , I think . I didn't need chemo just surgery then radiotherapy for the recurrance and immunotherapy was never mentioned .

I do ok but as the time for my scan gets closer my mind starts to think of the ""what if's " i can't talk to my son , he just says " you'll be fine " , so that's  why I pop on here as we're  all understand what we are feeling .

Good luck for your scan on Xmas eve .

Take care Sandra 

I would say to your son in a nice way that fortunatly he dont have it ,because my mum had different forms of cancer for 35 years and untill i got it myself i didnt worry about mum either, but over the time ive had it i now know what she must have gone through and regret not caring more for my mum

Hi Paul , yes my son does know the anxiety as he also went through it 23 yrs ago when he had leukemia,  maybe he is like me  , when my mum had lung cance,  I think I was in denial that my big strong mum that was always there for me ,  was going to leave me . Maybe it's  because it's  the 19th yr anniversary of her passing that's making me feel a bit down and like you I too have regrets of not understanding how she was feeling .

Maybe because they caught mine early and I didn't need to go through chemo ,  as he had done , that he thinks it will be fine but my cough and breathlessness are getting a bit worse , hence I'm worried what scan will show up .

Take care Sandra 

Just an update to all that replied. My husband had the best news, lung/bone all shrunk, brain met not visable. He cried, I tried to be the strong one, but cried in pharmacy with the nurse who took me down for meds. Cant put into words the relief & wish all the best news for everyone going through this awful disease x