Got it wrong

Hi Frazzled,

Good to hear from you again.

I am sorry that things are feeling tough at the moment. 

I still sometimes find the phrases and terms the doctors use unclear and it can be confusing at times. I hope that your lung health nurse is being supportive. Have you talked to the nurse about the breathlessness and were they able to offer any help or medication?

It's always a strange time when children leave home and I remember feeling a bit lost for a while when mine did. Sounds like your son must have done well in his A levels to be off to university. Although the house might feel empty for a while I am sure he will be back regularly - with his washing etc. 

Applying for the bungalow sounds a good plan and I understand change can be unsettling, but you have coped really well so far- thinking back to how you felt when you were first diagnosed. You have been through a lot. 

I hope that you are seen quickly for the other issues and can get some reassurance soon.

Jane

Yeah my lung health nurse knows I'm still short winded alot and they are supposed to be setting me up in rehabilitation physical therapy to try and help with it. I feel stuck in all the time so I'm enquiring about a scooter so I can get out without paying a taxi every time I want to do something.  My son did 3 yrs of college first now he's off to university and it's far enough away I want see him except maybe during summer break but he said if he had a job he wouldn't be coming back then eaither. My 19 yr old that argued all the time and wasn't nice has ended up pregnant and single but has her own place now and baby boy Ezra is due in September I'm kinda looking forward to that.  Yeah I enjoy the emptiness but afraid I'll get stuck in a run and not beable to leave.. everything just feels so weird.. thank you for your response as I do feel lonely on the aspect of having no friends.. and out of 5 kids 1 talks to me regularly.. 

After something as big as cancer, life can certainly feel a bit overwhelming for a while. Maybe a new start in a bungalow that is nearer shops/buses etc would help with the isolation. 

I remember you saying about the arguments with the 19 year old. Is she still close by? A grandson due next month is something to look forward to. I expect she will need your support with the baby, being on her own. Maybe it will help bring you closer- with her being in her own home now as well. 

I don't know whether you claimed PIP but if so I believe that you can use some of it to arrange a scooter.

Motability Scheme | Lease a car, WAV, scooter or wheelchair

Jane

Yeah we get along better now that she's out. And I do claim pip that's what I was gonna use for the mobility scooter..I will still be looking for a bungalow but not till he goes in September