Recently diagnosed

Hi Diggers welcome to the group, but sorry you find yourself here. My journey is different to yours, I had surgery with laser treatment on my bronchial airway, and then radiotherapy. Radiotherapy worked very well for me, and I have been on hormone treatment since.

I am sure others will be along to share their experience with you soon, in the meantime you can read our journeys by clicking on our user name and going to our profiles. 

Thank you for your kind words x

Hi Diggers  , I had my op 5yrs ago and I have copd , emphysema and diaphragm is pushing up into right lung and I've had blood clots in lungs before , one of the consultants I saw said " I think we can get you through it " talk about putting the fear of God into me !  but it wasn't him that did my surgery ( thank goodness ) and I got through it .

Is it the asthma that's the high risk ? Did you not have a breathing test to check if you pass for op and a pet scan to check if it's spread to nodes , they took some out and tested them when they did the operation and mine were clear but they didn't think it had spread to nodes as it didn't show up in pet scan but they checked them anyway .

Wishing you all the best for Friday and hope you get  good results .

Take care x 

Hi Alexi

I failed the FP1 test (the ‘huff’ test) . To get my lungs stronger I’m on the treadmill 3 times a day and doing breathing exercises. 
Im not sure why the lymph nodes didn’t show up on petscan, but they’re testing me again . Thank you so much for your encouraging words of support , I need bucket loads at the moment , it’s a very scary time at the moment and hard to explain what’s going on in my head . I’m not in any pain, have no cough or symptoms so it all came as a massive shock . I went for a random scan at a mobile scanning centre and found out 3 weeks later . So … fingers crossed it can be treated and cured , hope you are still well and thank you again xx

Hi Diggers , you can always pop on here and get support by the bucket load  ask questions or even just have a rant . It's different coming on here as most of us have been in the same position you sadly find yourself in , than it is talking to family and friends who may not fully understand how you feel or what's going through your mind .

I'm doing ok , thanks for asking , just as I thought I was getting to the end of the 5 yrs of check ups  , nope the hamster is back on the wheel for another 5yrs of check up .

Take care x 

Sandra 

Thanks Sandra 

I hope you get through this too xx 

I’ve got loads of questions so no doubt I’ll be reaching out a lot more .. 

Thank you so much for your advice and lovely thoughts xx. Take care and hopefully chat again soon xxxx

Hi diggers . 
I was diagnosed with COPD and given inhalers and told I had a bacterial infection , which turned out to be 5.5 cm    NNSCLC in my right upper lobe  which has spread to the second lobe  and to several lymph nodes  . Also was given brain ct  and have been told I also have a non malignant tumor there too.  But  now they have said that it’s possible that I don’t actually have the COPD . It was the tumor  that was creating the shortness of breath .  I’m receiving  chemo and immunotherapy for 3 rounds followed by an upper and middle lobectomy. So please don’t be scared to ask for a second opinion .  Different hospital and different areas do things  differently.  I do understand  if they find a mutation they would not offer you the surgery. Hey worth going back to clarify a few things even  just to give you peace of mind . Sometimes the shock of the news you have been given you don’t fully take in all the information. Hope all turns out well for you  . Anytime you fancy a chat   Just message . Take care x

Hi there , wow that’s opened my eyes. I’m having an EBUS tomorrow and get the results with surgeon a week Friday. I have loads of questions to ask him as some of the stuff he told me was a bit confusing. Luckily I record all the conversations I have with the staff to listen back to . Thank you for your kind words and advice , I’ll be in touch . 
You take care too and thank you  again xx