Hi. Firstly, i apologies for the length of this book I seem to have written. I don't see humans and my dog is not good at conversations.
I was diagnosed with left side lower lobe lung cancer back in December. It was stage 1, but due to my complicated medical history, any treatments we're ruled out, they couldn't even do a biopsy because the position of my tumour was too high risk, so I was referred for palliative care only.
Since then we had a little struggle trying to get pain medication sorted but finally got some relief with fentanyl patches.
2 weeks ago I started to have pain in my left shoulder, making driving impossible, then about 10 days ago I started to get severe pain from my ribcage down to my hip, radiating from my ribs and spine, and it's got increasingly worse. It goes right through from back to front and is excruciating. The fentanyl patches, 37mg per hr and Oxycodone liquid 10ml every 4 hours is not touching it. Suddenly it's like I now know I have cancer.
Having no treatment means having no scans, staging, etc so I have no idea what's going on inside my body. I'm suddenly scared that my time is running out, my hospice nurse says their consultant is coming out "soon" to try and sort pain management and a hospital bed is arriving at my home imminently. I can't cope with this pain, I'm scared to move a millimeter as it is even worse and I'm really, really struggling. I'm disabled, live alone, am all alone and just can't cope anymore. Aaaarrrrgggghhhh
Hi Feebz , I can understand how you feel being on your own , but you are not alone by popping on here there will always be someone to talk to , I'm on my own and I find popping on here helps as there is always someone you to talk to.
I'm struggling to understand if it's stage one cancer why are you only having palliative care ? Even with stage one surely they should be keeping an eye on it via scans . The one thing I remember from my mother's cancer and when I had breast cancer was being told " you don't need to suffer pain " .
Maybe if they can get your pain under control you may feel you can cope a bit better , might need to up the dosage but either nurse or doc will sort out what is appropriate dosage to ease your pains .
Sometimes our furry friends are the best friends to have , my wee cat is a very good listener and I talk to my late mothers picture , I don't get any response but it let's me vent my feelings and sometimes letting your feelings out gives a slight relief
Take care x
Hi Feebz I am so sorry to read your post, no one should have to go through this alone, and Alexi52 is right, you shouldn’t be in pain.
Can I suggest you call the macmillan support line on 0808 808 00 00 who are available 7 days a week from 8am until 8pm.
I myself have been struggling with severe pelvic and back pain, and I have found my local hospice to be very helpful, so hopefully they will be able to help you soon.
Hi Alexi52
In November I was stage 1 and both oncology and chest clinics discharged me over to palliative care and primary care.
Things changed yesterday. Ooooooo, it was a bit of a day. 11am OT came, she's organised a hospital bed to be delivered on the 13th, and a memory foam cushion for my couch. Then my Palliative Care Nurse came at 2pm, she'd organised for the hospice consultant to come out next week, but decided it had to be "today Fibi " so the consultant came at 4pm. He's said I need a full body scan ASAP but he could see my body won't tolerate it so I'm now on the waiting list to go into hospice to sort out pain management. He was also concerned that my pupils didn't match or react how they should, and felt the lymph glands in my painful shoulder, which is why he wants a full body scan, to see how much damage Larry the Lunglump is doing inside. I am so relieved, that much was organised yesterday, I'm grateful for the speed they work at. Now it's a case of my friends rearranging the furniture so that the bed can be delivered, and take Athena, my Basset Hound, for a holiday whilst I'm in the Hospice. Apparently the waiting list is only about 4 days. Thank you so much for replying to me, having people who understand is a blessing, Feebz x
Hi Chellesimo and everyone who's replied. I've written a lengthy reply to Alexi52 about everything that has happened since my post on Tuesday, please read if you get the time.
Thank you so much for your reply to my post, it made me feel better just knowing there are people who understand. I have no help from my family, yesterday, my mother phoned to have a go at me for not bringing her wheelchair back, (I'd borrowed it for my farewell tour), I told her I was really struggling and could no longer drive, but she kept on and on at me. She hangs up when I try to talk about my cancer and is no support at all. It's really hard, but having a community out there who don't shut me down is a blessing, so thank you heaps, Feebz xxx
I’m glad to hear that things are happening to help you, OT’s are fab and can certainly make things happen. Hopefully you won’t have long to wait for your hospice stay, it is reassuring to know that your doggie will be well looked after. As for your mother and the wheelchair, you really don’t need that stress at the moment, so I would ignore her, and concentrate on your self x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007