Mum as said no to treatment STAGE 4 metas lung cancer

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Hello everyone, please bear with me! 

my mum was dignosed with stage 4 lung cancer that’s spread to both lungs liver and lymph nodes in chest and neck! Mum just turned 58 so young!!! 

we saw the oncologist today who explained they would try 4 rounds of chemotherapy but mums declined it as she doesn’t want to be poorly! 

2 weeks ago she had one radiotherapy which was to suppress the cough she was only offered 2 and I think it was just to passive her! ahe was so poorly 24hrs after in a lot of pain and been sick! So she refuses the second lot! 

anyway they said today without treatment we are looking at 6 months give or take! I mean when do you take Thai 6 months from?

we had macmillain in today to do the hard conversations 

this is a world I never wanted to enter but low and behond 1st may life changed forever! 

How quickly does it take over without treatment 

  • Hi Paula u poor thing . Sorry to repeat guys I have stage 4 lung stage 4 liverstage4 lymphoma stage 4 bone stage 4 brain and andrenal  I was diagnosed last October I was given 6 months from diagnosis I’m into 7th month andDisappointedm poorly and in pain every day . I’ve had Star Trek type laser brain surgery back radiotherapy and am on aftanib tablets which are basically chemo tablets every day . I see no light at the end of tDisappointed tunnel I’m only taking meds for my kids I’m only 55 I was 54 when diagnosed. I’m now considering not taking my meds as dihorea and constipation awful Disappointed. Be brave I can totally understand her decision let’s pray she has more time . If it’s less it’s a mercy if it’s more it’s a blessing. I am speechless for u my love Disappointedtotally devastated . Please let us know how u fair. Try and enjoy every day even if in pain. Time is precious you can either choose to be hateful or graceful. I’m both simultaneously Roflplease take care

  • Hi my Lovely am so sorry to hear your unwell! Thai was mums issue she doesn’t want to be poorly as atm she is exhausted but getting out at times! 

  • Paula I quickly registered for disability badge etc . You can go to concerts and loads of stuff for half price or less . Get the cinema CEA card . I’m going to abba experience on Saturday then killers in July etc. I’m keeling over in pain but I don’t care bcoz either I’m in pain on my sofa or out so I prefer out . I say to people just ignore my loud moaning I’ll be fine this is my life now. I do pray a lot it really helps me I’m a Muslim I’ve found a lot of solace in my amazing religion. Please try and go out and do stuff and phone venues people r so kind and generous at theatres etc . Try and have stuff to look forward too . My nephew getting married in Sep he said please aunty hang about . I don’t want to my pain is unbearable but I’ll try I guess . So be brave my love it’s not easy at all just try and do what u can  

  • Hi  welcome to the group but I am so sorry to hear about your mum. It is so hard to watch a loved one go through this, I cared for my own mother who had ovarian cancer, so I know what you are experiencing. 

    That must of been so difficult to hear them say your mum has 6 months, but no one really knows how long we have left. It is like the saying, how long is a piece of string. My own mum was very determined but at the end I believe she decided she had enough and was ready to go, but it was only when she was ready. 

    The online community is a great place to come and put your thoughts into words, and to connect with other people who are going through a similar situation to yourself. As well as the lung group, I wonder if you may benefit from joining the Supporting someone with incurable cancer forum 

    you can also chat to someone on the macmillan support line on 0808 808 00 00 who are available 7 days a week from 8am until 8pm. 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • I still regret insisting my mum has the treatment. It’s made her feel very poorly and she suffered a lot more unnecessarily. It’s easy to say this in hindsight, but back then I had a lot of hope the treatment would work. My advice to you is to respect her decision and to take it day by day, try not to think too much about the future. It’s incredibly hard and sh*tty!