My mum has terminal small cell lung cancer

  • 14 replies
  • 107 subscribers
  • 1906 views

Hello everyone I’m new here.

My mum was diagnosed with stage 4 small cell lung cancer a few weeks ago and they’re hoping she can make it to Xmas.

I just wanted to hear from anyone who has cancer on what they think I could do to help her get through this? My only hope is that we can get her through this as comfortably and pain free as we can.

I also wanted to know what I should prepare myself for? It must be absolutely horrific to see someone you love die but I’m just wondering if anyone else has seen things that they wished they had known about beforehand.

Thank you so much!!

  • Hi Skemble.

    so sorry you are experiencing this with your mum. I have advanced Adenocarcinoma, I am treatable but not curable, I try and make every day count, I only do things I want to do and that make me happy, if you tap on my name at the top of my post you can read a bit about my journey so far.

    I can imagine this is very difficult for you, you are doing the best thing possible by being with your mum, make sure you have regular contact with GP and local hospice, they will be able to help with the obvious pain etc but they can also provide other support for you and you mum, all you have to do is ask, I’m no medical expert but I will listen and support you if I can, and remember you can also access the macmillion support service either by telephone or using this forum.

    I hope this helps, if you need support just message, there is always someone in this forum who will be helpful, above all remember you are not alone we are here.

    sending you a hug for now

    Donna

  • H Skemble sorry to hear about your mum love , as Hamhat as already said , seek support from your local hospice , Maggies centres if there is one nearby and talk to the on line macmillan or Roy castle nurse support line I found them to be amazing support …. And we are all here to listen too  .ELLY X

  • Hi Skemble, So sorry, it's a hard one, I know.  Just be with her.  My Mum has stage 4 SCLC, she got treatment i.e Chemo.  Have they not offered Chemo.

    Sending you a hug, love T xx

  • Hi, my mum was diagnosed with terminal lung cancer 6 weeks ago- oncologist said no treatment available as it’s advanced and aggressive, it’s devastated all our lives, and unbelievably my dad was diagnosed with an aggressive form of lung cancer caused by asbestos 2 weeks before mums diagnosis. It’s ripped our family apart. I feel your pain. 
    good luck and stay strong . 

  • Hi Skemble, 

    My dad was diagnosed in January this year with the same, extensive SCLC, I'm really sorry, it's a horrific thing to be going through. 

    Have they offered any type of treatment for her? My dad had chemotherapy and radiotherapy (although they've now stopped all treatment). We've started palliative care with Dorothy Hospice who have been great with supporting us to put the right pain management programme in place to help him be as comfortable as he can be. 

    Wishing you and your family all the best and do keep us posted with how your mum gets on xx

  • Thank you for your response. My dad has Mesothelioma and is on his 3rd round  of immunotherapy. My mum was told there is no treatment for her as her lung cancer is advanced and aggressive. My dad is really well but my mum is really struggling to breath and is in a wheelchair, she is waiting to have her lungs drained for the 3rd time. Do you have any idea of time frame with your dad?. Is he able to do anything… my god it’s so heart breaking. I can’t remember what life was like before Cancer. I can’t bear to even think about Christmas. How are you coping. Any advise gratefully received.

    All the best x 

  • Oh Bluexx, it is so hard, I am at the end stage with my Mum, she has SCLC, it is so difficult and hard to understand and or take in.  My parent have had a rough ride this year between strokes, both diagnosed with lung cancer, one terminal(Mum) and a Heart Attack

    We got told 2 weeks ago, if we get to Christmas we will be lucky.

    Take Care and I am sending you a massive hug. Love T xx

  • Thank you xx right back at you xx

  • I am in the same position, although my mum was told chemo was an option as she is still well at the moment. So we are hoping they can extend her life a wee bit longer. Hers is in her brain also and this is what was causing the concern. 

    it’s so heartbreaking, I really hope you get your Christmas and your mum is pain free. It’s so hard isn’t it. X