Dad SCLC scan update and palliative care 18/10/22

Hello Eleni, It is so hard to comprehend, Like me were are now in the waiting game.  My Mum is the same looks fantastic on the outside but she stopped the treatment a few weeks ago, her body will now not be able to fight this cancer.  I can see slight changes in her eye colour (Liver is her problem now, this is where it is most aggressive).  She is still running after my Dad, who is really poorly but you can see the struggle. She is still trying to be independent and we help where we can or where she will let us.

We met with the Macmillan nurses to discuss the plan!!!

Its like a ticking time bomb, we don't want to go off!

My heart is with you. If you ever need a chat, just message.

Love T xx

It’s crazy isn’t it! I think we’re all still in shock and weren’t expecting that it would be so soon that they couldn’t do anything. I feel like I’m grieving a person who’s still alive but that’s what it feels like right now, and as you said like a ticking time bomb

How was it with the Macmillan nurses? We’ve been told that we’re going to be contacted to plan end of life care.

Thank you for the kind words and likewise hugs and thoughts are with you xx

Hi Eleni

Sorry to hear the news about your dad. My mum is terminal and in the summer we were told months up to one year, but it’s hard for specific time scales to be given. Since then my mum does not want to talk about anything to do with end of life. She lives alone and still on the whole managing fine. I look at her and wonder how can she deteriorate so much, from how she is now. 
She could not have any treatment due to existing health problems. 
I too dread what is to come and have been told they cannot give us much idea as they don’t know if the cancer will spread further. 

Sending Love x

They were lovely and so tentative to Mum and her surroundings, her wishes were all noted down as was my Dads.  They took note of my Dads health, he has Lung cancer but never treated but surviving 3yrs now, but something tells me he wont be far behind.  He is very poorly most days and they are still very much in love after 59yrs.  This was all noted.  Honestly the girl was great with them.

Hi Milie 

So sorry to hear that, it truly is awful when they say that nothing can be done and then it feels like you’re just waiting for the end. We’re trying to see everyday as a gift and being grateful for whatever time we have together but it can be difficult and still feels like time that’s been taken away from us.

All the best to you, your mum and your family x

Wow 59 years married is incredible, how lovely, and I’m sorry to hear about your dad as well. Great to hear that the nurses were tentative to your mum, I hate the idea of having to put all of those plans in place but I suppose we can’t avoid that it has to be done x