Just been given a death sentence - need support

Hi Middlemoor, and welcome to our group, although sorry you have found yourself here.What an absolute shock you have had. I hope you are getting some support at home. 

There are a few of us here that are incurable. There is also a group Living with incurable cancer forum - patients only

which you may want to join. The people in that group are very supportive. 

Hi Middlemoor

What dreadful news you’ve had. I don’t  have any advice or words of wisdom but I wanted to say hello and let you know you are not alone.

I am also a member of the incurables group and the people you meet there are incredibly supportive and wise.

patmart

Hello Chelle, thank you for replying to my post. I saw the link to the incurable group and have been accepted into it this morning.  

As you say, this is not a group anyone would want to be eligible for but the truth has to be faced. I don't see anything to be gained by pretending this isn't happening. 

I am getting lots of support from friends and neighbours, which has overwhelmed me - I didn't realise I had such good friends :-) 

I didn't used to be much of a one for social media or life online but things have changed so much that now I am realising how helpful it is to have the internet and access to sites and support groups like this.  

Best wishes

Middlemoor

Hi Patmart,

Thank you for your reply. I know this isn't something that is easily talked about but I very much appreciate any contact with others in the same boat. It's been hard telling friends such devastating news - it is a total conversation stopper! 

I am not someone who spent a lot of time living online - too old for that to be normal for me - but now I am starting to appreciate the benefit of having access to sites like this where I can talk to people who know what I am facing. I am reluctant to burden friends with my worries when they have never had to deal with this kind of situation before.  That being said, I have been incredibly touched by how much support my friends have shown and I am ashamed to say that I did not realise how much my friends thought of me until this moment.

I see you are also in the Incurable group , which I just got accepted into today, so see you there sometime.  Thank you for reaching out and I hope that I may be able to offer you support in return.  

The one thing this has brought home to me is that there is nothing better than connecting with another human being :-)

Best wishes

Middlemoor

Hi Middlemoor

Whay a terrible shock for you and with little time to get your head round it. I have no real words, but as chellisimo and Patmart have said, several of us here are also incurable. I for one, really benefit from the support here on the community.

Take care

• Hi Middlemoor, I'm also in the incurable category, I got told in May I have months to live... I was diagnosed on Xmas eve 2019 and honestly don't believe I'd still be here if it wasn't for the words of wisdom, encouragement, care and support from the guys and girls on this site. Some people show superb strength of character, and wee jokes too. Throw all your thoughts down, good or bad, somebody is always here to listen. Please take very good care of yourself.. Xx

Hi Middlemoor, so sorry to read your post - just wanted to send you a big hug xxxx cathy

Hi Middlemoor

Sorry to read your post. Please keep talking it sounds odd but it is cathartic to get it all out. I think some talking therapies or help from the palliative care team or hospice if you can be referred to one will not only help you but any family going through this with you.

It is hard news to digest of course, live your time to the best you can and they put estimates on this, not facts!