SCLC extensive, what happens after chemo ?

FormerMember
FormerMember
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Hi...my husband is on last of 6 cycles of chemotherapy, carboplatin and Etoposide.  The cancer is a huge tumour in one lung, also in lymph’s, liver, and bones. He was vv ill when diagnosed in Nov. Now better in many ways, but tired, and plagued with loads of mucus which he is always coughing out .   Waiting for scan.  The hospital won’t talk about what might happen next, and I am so worried.

Do they just cast us adrift ? It’s highly likely to come back. 

They might do cranial radiotherapy, but is that only if there is a good partial response ?

can anyone share experience please ? 
thanks 

  • Hi

    My SCLC was extensive across one lung but 'limited' i.e it had not spread to the lymph nodes or elsewhere outside of the lung.

    The carboplatin and etoposide combo is the classic chemo for SCLC, and is very good at shrinking the tumours. 

    No, the hospital will not cast you adrift so don't worry about that. The reason they are not committing to what happens now is that they need to see the results of the scan in order to determine the next course of action.

    The PCI radiotherapy for SCLC is usually undertaken approx. 6 - 8 weeks after completion of the treatment to the lung.

    I hope this helps a bit.

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • FormerMember
    FormerMember in reply to Kegsy

    Thanks . Does that mean  after final chemotherapy date ?

  • Hi

    No it means after completion of the main treatment to SCLC and the outcomes from that treatment,. Until you get the results of the scan and sit down with the Oncology team you don't know what other treatment could be offered, such a radiotherapy etc. The thing is everybody's cancer is different, so treatment plans  have to be specific to the individual.

    One thing I learnt from going through the treatment process was that every day was a 'school day' in terms of SCLC; how my cancer team approached things, the different treatment options, questions to ask and when, etc. I also, with great difficulty. had to develop patience as my nature is to want to know everything up front i.e. the what, when and why; this approach for exact detail and specific timescales is just not possible when dealing with the ups and down of cancer .

    Does this help?

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • FormerMember
    FormerMember in reply to Kegsy

    kegsy: thanks. It’s all SO frustrating. 
    Im getting better at trying not to look ahead, but like you, it’s not what I am used to. 
    Best wishes to you xx

    Rose