I would like to hear from anyone who has gone through or going through PEMETREXED AND CARBOPLATIN treatment and how it all worked out.

Hi Stagedoor

I have had Pem/Carboplatin to be honest i was quiet good on it had four cycles, i did have cistaplatin before and that for me was very hard.

Sorry that Pembrolizumad stopped working for you, i did two years on it with good results.

I did not have really any major side effects with the chemo, a bit fatigue, and taste did alter slightly.

Hope this helps a little .

Take Care Elliexx

"You Never Walk A Lone"

Hi Stagedoor,

Welcome here,

I have had Premetrexed and Cisplatin which was not too bad and then went on to Atezolizumab,  I'm now on carboplatin and paclitaxel which is harsher. Unfortunately the new treatment had a strong effect on me and they reduced the dose to 80% and increased the number of sessions to 8. Unfortunately everyone reacts differently to the treatments and what is ok for one can be horrendous for someone else. 

Try to gain the weight you have lost and get into the habit of drinking lots of water. The treatments do alter your taste so be prepared to change the foods you eat, I found the best results were spicy food and vegetables, and small and often worked. 

Wishing you all the best 

Albondigas x

Hi Bob,

My wife is on Pemetrexed, i haven’t been on a while, we seemed to just get on with it but im back on to see if i can get any tips from people with this treatment,

I cant remember the past 4 treatments my wife has had in the last 13 months since she was diagnosed but i know she had radiotherapy at the beginning and has  had immunotherapy but she has now been on Pemetrexed for 3 maybe 4 sessions, she had only had 2 sessions when they done a scan and this treatment has been working, her tumours have reduced in a few places, lungs and breast and the one on the breast has come down more since that good news, she was supposed to finish after the usual 3 months but they have decided to carry on because of this, think she gets another scan in a few weeks, not had the letter yet, going up tomorrow and Wednesday for more.

Side affects

We were told not to worry as you don’t get many side effects with , they said in fact only one person had and that was because they didn’t take the extra meds but wife follows everything she’s told to take and yes she got side effects. she dreads going for treatment now but will persevere and suffer them. She gets bad diarrhoea and constipation, cramps which is expected, very tired and sicky feeling constantly, cries a lot due to the feelings and cramp pains, it starts about a day or 2 afterwards and can last a week, so she gets 2 week out of 3 that are good.

She has had repositories, pills for this, pills for that, does everything she’s given and told but it still comes every 3 weeks, we book weekends away a lot and make sure we don’t plan anything for at least a week after the treatment, trying to plan a holiday abroad soon and her doc has said they’ll stop her a couple of weeks to work round that.

But she soldiers on, im on here to read thru posts to see if there’s anything that we can do to ease the side effects. We have read all the paperwork that comes but you can’t stop what’s coming.

George

Hi George

Many thanks for all the useful information which is a big help.

I have just had one treatment so far just last week like your good lady I have have taken all the pills etc i.e. steroids, Anti sickness and Folic acid.

At this time I feel tired a lot and a wee bit jittery and restless , sometimes find it hard to concentrate on something that I want to do.

My taste has slightly gone and I have only felt sick once, early one morning a few days ago.

The reports of your wifes progress is very heartening and I will try and work out things to do on the two weeks after the treatment.

The treatment seems to be successful and so I will have to keep that in mind while going through it all.

And do my best to take the pills in the right order on the day before and after treatment.

So once again.

Many thanks

Bob

Hi,

I've had two treatments of cisplatin/pemexetred, third is due this week. I was fine after the first treatment, though tired after having to go the the loo every two hours throughout the next night and day. After the second, I found that almost all food tasted disgusting. I also lost a stone of muscle, mainly (they say) due to the steroids I was taking to tackle secondaries in my brain, which has left me pretty weak. Part of the taste problem is caused by thrush infection which is proving difficult to dislodge.

No sickness from the chemo, though trying to eat food that tastes disgusting is a challenge. Spicy/salty food and fruit is good (especially mushroom risotto with plenty of pepper!). I snack on Tesco pre-prepared bacon strips - very unhealthy, I think, but a bit late to worry  about that. The dietician gave me Ayres smoothy shakes which are excellent; don't let them fob you off with complan. 

I've no idea yet whether the chemo is doing any good - CT and MRI later this week.

Stephen