Lung Chatty Thread

Hi john Boy2,

since I was diagnosed I have always slept 2 hrs at a time, but strangely I am never tired during the day, it’s gone on so long now I suppose it is now normal. Sorry to hear about your wife’s predicament, visiting hospital after work is hard going, I did it myself when my poor dad was in hospital. 

I have cramp in my feet and sometimes it goes to my calf’s but I’ve had that for as long as I can remember, I have to put my feet lying sideways as the weight of the duvet starts it off usually, then it’s a mad panic to stop it before it reaches my calf’s, thinking about it maybe it was an underlying problem I always put mine down to poor circulation to be honest cos I’m one of those people who feel the cold easy and have numb white fingers and toes when it’s cold, but if it’s something new for you maybe you should mention it. It probably doesn’t help your sleep cos you’ve no time to wind down. 

You might be right about the circulation Julie, I’ve just googled it (I know we shouldn’t, google) and it says to try and keep hydrated but also a warm bath might help to ease the cramp.

Wish I didn’t feel so tired, all the time. I normally have to have ten minutes shut eye in the afternoons. It must be nearly that time now. 

hi chelle. re the   amitriptyline wife says couldn't stay awake on afternoon when on them  was on 25 doctor cut to 10 

Hi glad to know I'm not the only one with sleep problems ,I look out of my window sometime in the middle of the night , and I must be the only one up , I was never a good sleeper before treatment ,but now terrible, I to sometimes take co codamol Derek when I'm a bit achy, Also Chelle , I was given amitriptyline for nerve pain, that has now gone, so I'm coming of that slowly didn't really help with sleep unfortunately. just gave me a dry mouth.sometimes I think you have to adapt to these things could be worse. Julie hope you will find the strength to walk down that corridor. Good luck to everyone have treatment . Ellen X

Darlo, I’m only on 10mg of amitriptlyne. My hormone treatment also makes me tired, and gives me awful headaches, which is why I was put on the  Amitriptlyne. 

Ellen it’s terrible when you can’t sleep. I did have a long period of time when I would fall asleep quite quickly, but would wake 2 hours later, every night! The doctor gave me sleeping tablets and that did work, but it’s easy to get addicted to them. I’m grateful the amitriptlyne is working for me. Antihistamines are also good for making you sleep, and you can get those over the counter x 

Hi Chelle, my doctor gave me sleeping pills when I was having chemo, the steroids made it even harder to sleep , they were great at first ,didnt realise they were addictive , don't think  doctors are surposed to give more than about a weeks supply , but keeped letting me have them ,then after a while they stopped worked ,so  wanted to come off them , that's when my doctor told me I would have to ween myself off them , It was awful took me about 3 months.never again .Ellen X

He really should of told you they were addictive. I would only take them 2 nights in a row then have a few days break.

I’ve just seen there is a documentary on ITV at 9pm called “why we can’t sleep”. Might be interesting. 

I know Chelle, I would never have kept taking them had I known how hard it would be to come off them, I should have looked it up.its the same with the amitryptoline was told by my doctor I could just stop taking them ,but if you google the reviews say otherwise.yes I might watch the documentary tonight, might get a few tips 

not much happening this weekend.   got appointment to see oncologists understudy monday. find it a waste of time but got to go. 

Well I have had enough of the heat in Southampton, and have come to Wigan to cool down. Also a little matter of me being Godmother to my nieces little boy tomorrow here.