Lung Chatty Thread

Thank you all. 

Nah to be honest I have been quietly ranting today. 

I got an email this morning advising me that the charity will no longer fund the cleaner which they offered me.... I asked gosh did they think I was going to be cured. Heard nothing about it on the news  

Unlike me i know, but my work status may also change this month. Can't moan at that they have gone above and beyond throughout but i haven't worked since July now. I'm more worried that I could loose my medical insurance cover and other things. I need to speak to them properly and all before a new treatment... so i feel a bit like the rugs being tugged from beneath me in all directions...

I didn't expect to still be here by now... It's great that I am... but almost feels like it will get harder by surviving this long. I know no one means that but it's a bit how i feel about it all.

I went to see A Macmillan advisor she helped me with esa when my sick pay stopped.

filled forums took about 10 days had to go job centre.

Had another form just before Christmas got my lung cancer nurse to look at it for me. Doctor wanted £25 to fill it in.still waiting though for them to fill it in got to chase it tomorrow.xx

good luck with yours as though we need more stress.xx

So I’ve been sitting here all day twiddling my thumbs and you’ve been quietly ranting - we could have had a good old screaming session together.

Joking aside I have to plead ignorance with the health insurance, it’s obviously important for you.

The cleaner I’m sure can come from somewhere else, I’ll come once a month if necessary to do your cleaning as my brother would say, what a nice problem to have, to have outlived the services of a cleaner

Your new treatment is on its way I hope and I’m really, really, hoping your life is about to get just a little bit easier

So for all that rant there is actually one issue - the health insurance - see little things become such big things

Not much help I know, but even I feel better getting that lot out

Gina,

Are you banging and slamming on keyboards

Hi Peggy

Thank you, I will have to discuss with my work exactly what they are planning to do first, then see what I need to do.

Unfortunately Jersey has completely different benefits, tax systems etc to the UK so Macmillan over there won't be able to help. There is a Jersey Macmillan, which is kind but haven't been able to go there since the brain mets as I can't drive and unless you drive up it's a fair walk (when you are not feeling well) with a fair few steps to get into the building. Didn't really think that one through did they. It's a private medical centre so a lot of places are run from there.

Eekk I am sure they do... We also pay to see the doctor over here so I will get a filling in charge and about £42 consultation charge. Joy.

Sorry Julie - it said it hadn't posted (i must have actually pressed back so hit post it again and the delete button has gone).... Stupid phone, I much prefer my laptop.

Ahh sorry, I should have come and had a rant. To be honest it made me cry. I only accepted the offer as I really struggle. Through treatment I struggled to just get down my own steps from my house.

If I need a cleaner I will have to pay for it and not sure what help I will be given from anywhere (as I say Jersey law and benefits are different). Once I left full time education at 18 I have been permanently employed and aside from the odd sick cheque I have never claimed benefits.

I keep saying to them there is nothing for us 'inbetweeners' to provide support or advice over here. The young ones up to 25 have a few and then the more 'normal' people to get cancer are catered for, however those say 25 - 49 there is no specific charity and we tend to have completely different needs to the older or younger people. I.e. having to work to pay rent/mortgage, still studying on the job, young children maybe, or unable to drive and bus service is usually one per hour here and siblings usually about the same age at work so can't always help, fertility etc etc etc. I could go on even more but will stop there (can you tell I am rather peed off)?

The treatment hmm again I need to ask about that, if I loose my medical insurance, with such a low percentage for the mutation, will I still get offered it? I don't know, likely, but all made everything a bit uncertain.

But yes, I was banging and slamming the keyboard earlier when I sent my ranty response to charity this morning.

Oh no Gina, what rubbish news to be given. Yet they call themselves a charity! Doesn’t sound very charitable to me! And the work situation as well. Hope it’s not as bad as you fear.

Thanks Chelle, I am sure it will all be fine in the end and I am likely overly fretting about it all. Scanxiety, work possible changes and potentially loosing my insurance to be topped off with loosing my cleaner has just sent off on one a bit and the cat is rubbish to talk to about it.

o dear Gina you are having issues from all over. here is me mouning about my attendance allowance. when truthfully i dont realy need it. 

Aww Darlo sorry, I have got over my grump now. Of course you should post about whatever it is on your mind, we all need to get it out somewhere.

Scan all done and then went to work and got answers too to most. They are not planning to terminate my contract or anything like that, so medical insurance will definitely still be in place. That's a huge weight off my mind.

Any news for your results appointment yet Darlo?

What a relief Gina,

So pleased about the medical insurance