Whoops!

Thanks Kegsy will read now.

Quick read, I thought, then I'll get back to Kegsy. But this is War and Peace!!! Maybe not the size of the paper, but for every question it answers, it raises 5 more.

I may be some time.

Phil 

Good luck Phil, I did try to have a read but my concentration levels are no way ready for that. Sad to see that you are having to fight to try and get the treatment. Fingers crossed for you here x 

Hi Kegsy

Managed a shortcut.

Bottom line is that the draft consultation document has to be agreed and reported on by end March.

NICE are sending me the specific text so I can give it to my oncologist.

I am not raising my hopes as they have been dashed too many times but I am most grateful for you pointing me towards this document.

Regards Phil 

Hi Phil

Happy to help.

Kegsy x

Hi Phil,,,,We’re keeping our fingers crossed for you. Hugs, love and Best Wishes. Dawn. Xx

Thank you Dawn.

Marsden today for decision re HALT trial.

Phil 

Fingers crossed Phil. There has to be something that can carry on where Afatinib stopped! 

Regards

Well that was good.

I am suitable for the HALT trial subject to further tests including MRI and Brain scan.

However I have been given a liquid biopsy in the hope they show a specific mutation which can be treated by a drug similar to Afatinib. I should have an answer by end March.

Phil 

That sounds like a great outcome Phil. Only a few weeks and you should know what you are going on to next. Brilliant that all your eggs aren't in one basket. It great how things have changed from a week or so ago when the options didn't seem so palatable. I hope things keep getting better for you.

Bob