Whoops!

PS Dont ever apologise for helping me. You can rattle my cage whenever.

Email has gone off and I await the reply.

Oh boy waiting is such a pain.

Phil 

Hi Chelle

Sorry I missed your post this morning.

Afraid you are reading it correctly. However I have now found out thanks to Kegsy, that SABR is available as general treatment so Im waiting on a reply from Oncologist. A/L until a week Monday!!!

There are other options but this is the best one.

Many thanks for your interest.

Regards Phil

Will keep everything crossed for you Phil, that does sound like the best option x 

Hi Phil ,

Hope the reply from the oncologist is a positive one.

Albondigas x 

Hi Phil

I am awake (still) 

I can't leave you alone for two days and you get your bloomers in a bunch eh

sounds like you and the others have concocted a good plan of attack there. I also hope your oncologist comes back with a positive answer, could the trial route even though the normal treatment is approved and funded be all about money I wonder?

If not and it's radio trial or nothing I'd be asking what is the difference on outcomes between being a placebo radio or and actual chemotherapy receiver?

Hi Gina

Can we leave my nickers out of this? They are the one thing that stands between me and a nasty accident with a zip!!!

Sadly I am thinking money is the main feature. Why else haven't I been told about a possible further mutation or the available SABR treatment.

I understand your question about outcomes but that isn't what it's about for me, at least not unless there's a massive difference, which there isn't. It's about the effect each treatment has on my general health and thus my quality of life. I know other's on this site have gone through far worse than me, but having spent most of last summer on my back I realised that longevity isn't all it's cracked up to be. I want quality of life or I may as well die.

I can do without booze, I can push food down that tastes like cardboard, but I can't be doing with being helpless if there is no possibility of improvement.

Thinking about it that should be the mantra for governments.

'Are you useless, is there no sign you will get better - Well bugger off and let's get some real politicians in power'!

Oh we don't have any!!!!!!!

Thanks Gina and all who have commented on my thread.

Phil xx 

Hi Kegsy

At last an answer. SABR is only offered on NHS for specific Mets (brain for lung cancer) and thus not available to me. The bloody machines are standing idle but NICE (I would love to meet these useles ***** in a dark alley) wont licence them for general use.

Phil 

Someone, sorry I cant find the original post, suggested I enquire whether my tumour has re-mutated and maybe suitable for a different drug. 

I am to be tested this week.

Phil 

Hi Phil

What a bugger! However I have just found an Oct 2018 consultation document (updated 2019)  which includes recommendations for revised guidelines on the use of SABR for NSCLC, so all may not be lost regarding the  SABR.

https://www.nice.org.uk/guidance/GID-NG10061/documents/short-version-of-draft-guideline.

Its a bit of a long read but the quick way is to right click on the open document and use the Find option to search for SABR.

At least there is another possible option; let's hope the tests are positive for the mutation. 

Kegsy x