SCLC: 7 years post treatment

The drain was the most bloody painful. But give it a few more days. I took arnica to help healing  just do little tiny walks no more than 20 steps at a time  little and often if you can hopefully drain out soon and that will make do much difference to pain levels  xxxxx

Thanks looking forward to drain out

Hi all..anyone know if symptoms get worse just before your next chemo is due..feeling pretty rough before tomorrow's cycle..?  

Hi I would be happy to just don’t know how! Please help 

Hi how are you haven’t heard from you in a while. 

Janet 

Hi Kegsy,

You might remember me posting before about my friend. She is limited, chemo and radio with PCI finished last August. Last scanned in Jan, no changes, tumour had shrunk right back after about 3 chemos.

She has not really had too many days where she feels "well", and the oncologist has always said that it is down to the amount of treatment she had. Not sure if they gave her stronger as she is only 46.

Of course, every ache pain and twinge is a worry, but just recently she has a pain in her side, near where it all started. She is due another scan in 2 weeks, but I was just wondering do you ever get any pains at the original site or any other unexplained symptoms?

Thanks a lot

Hi 

Of course I remember your posts.

Everyone recovers at their own pace, so don't worry too much that her recovery is quite slow. 

Yes I think we all get the odd twinge or ache at the original site of the cancer. I always put this down to the scar tissue and possible nerve damage/sensitivity left behind by the radiotherapy. Mine is more noticeable if I have been more active than usual.

The forthcoming scan will hopefully reveal nothing sinister and she can then get on with her recovery. She will have to work at the recovery; it doesn't just happen.

I hope this helps.

Kegsy x

Thank you for your kind words... Her oncologist said that it normally comes back in the first 1-2 years, obviously could be longer.

She is 14 months in since diagnosis , gets a lot of these pains and aches. Once it was lack of vitamin D, they always tell her its just the treatment. Also she has a 7 year old to look after, so not much resting goes on!

Still, I'm very very nervous for the next scan and results.

Hope you're ok

xx

Hi

Yes I am well.

Just a thought but perhaps she needs to have a word with her GP about having a bone density scan, especially as she has already had a vitamin D deficiency. The high dose radiotherapy that was part of my treatment weakened my bones, not enough to be classed as Osteoporosis  but its lesser version of Osteopenia.  I now have a bone scan every two years to check my bone density is improving. It was my cancer team who first noticed the bone issue on a CT scan and advised me to request the bone density scan via my GP.

Fingers crossed for the forthcoming scan.

Kegsy x

Sure, i will be going with her to the next appointment so will ask thanks.

She had blood tests 2 weeks ago and her scan was already booked in for late June. Do you think they would call her in sooner if the bloods showed anything?

I'm getting so worried...

xxx