Anyone with experience of Tecentriq ? ( atezolizumab)

I forgot to mention if you have the 24/7 helpline No to the oncology ward ring them tomorrow and see if they can advise further 

Margaret

Hi Margaret, 

My Mum tried to call Dad’s specialist nurse who is great and my Dad has a lot of respect for. Unfortunately, she doesn’t work weekends and the answering phone said to call 111 or 999 incase of emergencies (I wouldn’t bother quite frankly).

My Mum will definitely be on the phone first thing Monday and we are already logging a formal complaint. This is peoples lives we are talking about! My Mum felt as if because  Dad has terminal 4 cancer, they just couldn’t be bothered and didn’t see the point... My Dad was just pushed to the corner and left. It is really heartbreaking in already untenable situation.

I just hope Dad is able to be as comfortable as possible until Monday  I can’t begin to comprehend how he is feeling right now and how it is at all acceptable to treat people this way.

Thank you for your kind words as always

Danielle x

Hi , . I am so sorry for your dear father Danielle ...what terrible way to treat him . I would complain to the Trust CEO as I have found that PALS are very good for minor problems but not so great for serious issues like yours. We had to leave our local hospital due to a complete lack of compassion and care ..so I know how your Mum feels about him being " written off " .I hope your Dad manages to get some sleep tonight and is not in too much discomfort. .

I have to say I feel very nervous about the side effects of this drug. My husband has only managed one round which he had 8 weeks ago. He has been very poorly ...much worse than after the multiple chemo infusions he has had. However, we go back this week for round 2 and are just hoping for the best. .

Sending my love and best wishes to all of you on this hard journey x 

hi Alice regards atezolizumab I have had 5 and although I don't know if it has shrunk anything I feel great apart from the tiredness . Margaret appears to be having it rougher than me. suppose only time will tell. trying to stay positive.  wish hubby all the best.

Hi Alice / Darlo 

I am getting really nervous now about this treatment as last time I was in clinic 3 weeks ago my oncologist ordered my scan early to see what’s going on as I’ve been gradually getting worse from treatment No 4, have had 7 now. It’s hard to say whether it’s due to side effects or treatment not working and the cancer is growing again

I’m in clinic on Tuesday to get results so will update then

Love to all

Margaret

thank you Margaret for update. hope all goes well next week. 

Sending you best wishes and big hugs Margaret! Fingers and toes crossed for positive results x

Thank you for your kind works Alice111. 

I do hope the next treatment is kind to your husband and gives him a break. 

What sort of side effects has your husband been experiencing after the first dose if you don’t mind me asking?

Sending you big hugs and best wishes to you and your husband x

Hi Dee0710, 

My husband had some of the common side effects like extreme fatigue and loss of appetite.  However, his biggest problem is his breathing. He has gone from being reasonably fit to struggling to walk. Initially, it was thought he might have pneumonitis and he was prescribed high doses steroids but they don't appear to have helped much. I think it just shows how unpredictable the response to the drug can be..lots of people have no side effects at all , but when you do get them they appear to be quite severe . My perception is that there are still a lot of "unknowns" around immunotherapy . All we can do is hope for the best. 

Thank you for the hugs and good wishes .  xx 

Good luck for Tuesday Margaret . 

Sending very best wishes x