Hi all, My husband was diagnosed with Alk lung cancer in June 2023 following a kidney cancer diagnosis. He has had several major health issues since but he has been on Alectinib since April last year, half dose with amazing results. Fast forward to three weeks ago and he had a stroke. The stroke affected his speech and language but he is getting there with that and stroke wise the hospital are happy. The main issue now is that they have discovered a heart issue that needs a pacemaker but the cardiologists won’t fit one as he consistently shows high levels of infection (CRP) and inflammation (ESR) They have done every test, scan and blood test under the sun and cannot find the source of this infection and they are now thinking it could be a side effect of his cancer. So I was just wondering if anyone else has ever had this issue. The hospital are waiting on oncology commenting but they are taking a bit of time so I am just looking for some light at the end of a very long, miserable tunnel. Thanks in anticipation x
Hello SaraCee,
I'm very sorry to hear of the problems your husband is experiencing.
I'm afraid I can't answer your questions, but you might find Macmillan's cancer nurses are able to help you. There are two ways to connect with them:
1. You can post in the ask a nurse forum which works the same way as the lung forum you're using. The link to this is:
2. You can talk directly about your problem which might be more useful to you - the link showing: how to do this is:
I do hope this helps.
Derek.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
