Hi..after it being mentioned to me , I searched online and found that there have been several trials internationally with Japan even adding Turkey Tail as a recognised useful addition in the cancer fight. Before I mention these to my husbands doctor at the risk of being labelled an alternative hopeful, I wonder if anyone has experience of Turkey Tail capsules during treatment of any sort? Plenty of “ miracle” incidents on YouTube etc which I am dubious about but also several proper trial conclusions that do make me inquisitive to find out more….just don’t want the doctor to scoff at me. Anyone had experience?
It’s Megan here from Macmillan’s Online Community team. I hope as a member of the site, you are finding it helpful to hear from others who share similar experiences.
From looking at your profile activity, I am sorry to hear about your husband’s cancer diagnosis. When being there to support a loved one living with cancer it can cause a range of emotions, so I am glad you are reaching out for some support. Alongside posting here in the Lung cancer forum, we have the Family and friends forum that may also be a useful space to post in. There you can chat to others who are also supporting a loved one and talk about how you are feeling.
I came across this recent post of yours and wanted to offer some additional support when it comes to complementary and alternative treatments. We understand that sometimes people want to discuss what alternative options are available to them however finding online is reliable information online can be confusing, as there is so much out there.
Please do speak to your husband's doctor as they can discuss how certain supplements and treatments can impact their health specifically.
Community members are encouraged not to make claims about the effects of alternative treatments. They can however share their personal experiences so hopefully you find the personal experiences you are looking for. Please see our Community guidelines for more information about this.
If you have any questions about complementary and alternative treatments, you can post them over on our Ask a Nurse forum. The Ask a Nurse forum is open from Monday to Friday where one of our Cancer Information Nurse Specialists will see your message and will reply within 1 to 3 working days.
I do hope you will continue to use the Online Community for support and if you have any questions or need any help using the site, please don’t hesitate to email community@macmillan.org.uk.
Best wishes,
Megan
Macmillan's Online Community team
