Lung surgery

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I have just had 4 rounds of chemo/immunotherapy and a scan after my third treatment which has shown the tumour hadn’t shrunk but had turned cystic(tumour is 5cm)I am due for operation on the 20th but would love to hear from anyone who is going through or been through the same treatment as myself. I’m worried sick about the operation and would love to hear from anyone in a similar situation and hear how you coped. Did you have keyhole or open surgery and was it successful. Thanks in advance…Blush

  • hi Tooty

    i had 3 rounds of chemo/immunotherapy back in june 2023 had all the relivant scans and they had found the tumour had died but put me forward for a keyhole surgery,   having that done up in London they could not get to it, so opened me up  they had found that the tumour had died but wrapped itself around my palmonary arteraryit was too dangerous to remove    now im not saying this was a bad thing  the tumour was dead    lymph nodes were removed and tested. Surgeon was happy they were free of cancer     still ongoing scans and full bloods done every 3 monoths, now every 4 months  still ok    someone up there is looking after me......fingers crossed 

  • Oh wow you have been through it bless you, and to hear your tumour had died must have been something great to hear! Yes someone is looking after you Ella and be thankful for everyday, so happy to hear your scans are showing no signs of cancer, I just pray I will be as lucky as you and get through this operation I will keep you upto date…thank you for replyingBlush

  • im here if you want a sanity check.....x

  • Thank you so muchBlush

  • I had 3 rounds of Chemo/immunotherapy I'm March 2024, Stage 3 Tumor shrunk by 10% but I went on to have surgery in June, Incision was behind shoulder. About 10 inches, I was in icu gor 5 days only because I couldn't manage my pain, total days in hospital 10, just don't expect too much of yourself afterwards, most important is to keep your pain under control when your home and eat little but often even if your not really up to it, I Dont try to push yourself to.quickly, Im nearly 1 year and still cancer free, Still working on my energy levels and have no feeling under right arm.duen to erve pain/damage .

    Message me any time, Even if it's just a chat ,

    Let us know how you get on , Fingers crossed and Good luck for the 20th

  • Thanks for replying, gosh it sounds like you had a really bad time too but thankfully you came through it all just like Ella, it gives me great hope although I wish I could be as positive as you both. Thank you for being here to share your story with me and yes I will let you know how I get on and hopefully I too will be able to share my success story tooBlush

  • Hello Tooty,

    I had my right lung removed in 2014 by open surgery followed by chemo. My staging was T2a N1 M0. 

    Surgery was on a Tuesday and I was discharged on Sunday. Recovery obviously takes a while and I was provided with all necessary painkilllers as well as physio advice.

    I too was petrified before the operation but it was nothing like as bad as I had imagined. It's very important to follow advice to begin moving and slowly bulding up mobility after discharge to recover as well and as quickly as possible, but at the same time not to overdo things.

    Now approaching 11 years lung cancer free on 10th June I'm forever grateful for the opportunity I was lucky to be given.

    I wish you all the best for a similarly successful outcome.

    Derek.

    Made in 1956. Tested to destruction.
  • Hello Derek, thanks for replying. You have done absolutely amazing! 11 years cancer free, wow, congratulations! Thanks for your advice I will definitely take all your advice on board, much appreciatedBlush

  • loved your sign off......made in 1956  tested to destruction !!!   how apt....  me too, but 1954  

  • Hi Tooty,

    I had three rounds of chemotherapy and immunotherapy followed by open surgery on the right lung. The tumour was 45mm in size and 20% dead.
    The surgery removed the tumour together with one fifth of the lung.
    Surgery on Wednesday, discharged the following Saturday evening. The incision was under my arm and approx 7- 8cm long,
    For me, the worst part was carrying the drain container around with me while in hospital and therefore not being able to shower. The drain was removed before I was discharged.
    The best part was being told when home to rest on the sofa with plenty of painkillers (which I didn't need) and lots of chocolate which I complied with gladly.
    For me, the surgery was a breeze compared to the chemotherapy.
    I hope all goes well for you and wish you all the best.