Immunotherapy

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I finished my radiotherapy on 4th October and had a CT scan last week. My primary tumour has shrunk by half but unfortunately the lymph nodes are bigger which I wasn't expecting. Without a biopsy the oncologist can't say if this is because of the Radiotherapy side effects and inflammation or if it's the cancer and she is not keen on this as wants to start immunotherapy asap. I should find out this week when that will be. It will be a drug called Pembrolizumab. I will have it every 6 weeks for 2 years. I am dreading getting lots of side effects or not being able to tolerate it. Has anyone else had any experience with this particular drug or any tips on immunotherapy in general. If this doesn't work I am just so scared that there is no other options available.

Thank you

RainbowRobins 9 months ago in reply to ClareH

Thank you Clare

I am so sorry to hear about your mum's scan but will keep everything crossed for you all.

Good that she didn't have many side effects. I had 30 sessions of radiotherapy and I agree it's quite tough. I was absolutely exhausted all the time but it did get a bit easier as I got used to going every day

I have been told that I can only have immunotherapy for 2 years though? I have had the first one and so far so good. 2nd treatment next week.

Take care

Shazzy2 9 months ago

Hi rainbowrobins I am also on pembrolizumab and my fourth cycle starts today, side effects for me have been extremely mild occasional diahorrea or constipation. This has only occurred rarely. I take anti sickness medication morning and evening. The medication for the diahorrea works extremely well. I get the pembrolizumab every 21 days. After 2cycles my tumour had reduced by 50%. I am incurable but treatable! I hope this helps you feel a bit more confident about starting your treatment. Enjoy the day and stay positive xx

Sharon xx

RainbowRobins 9 months ago in reply to Shazzy2

Thank you for your reply Sharon

Wow 50% reduction is amazing. I am also incurable but treatable so trying to stay positive that this helps me.

Hope all goes well today

Best wishes. Xxx

ClareH 9 months ago in reply to RainbowRobins

Keep going! You’ve got this, my mum lives abroad and was lucky it was funded for so long! Please keep us posted on your progress

HelenCG 8 months ago in reply to StevePr

Hi Steve. I’ve only just come across your comment and I’m so pleased I have. What wonderful news for you. And how encouraging to read. My Mum was diagnosed 4 weeks ago with stage 4 lung cancer and starts immunotherapy next week. I’ve had a very down day today as I still can’t believe it. But this little nugget has lifted my spirits

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