My mum has a large mass on her right lung and went in for a Bronchoscopy yesterday, but they weren't able to do it as her breathing wasn't strong enough. The consultant said they wouldn't try it again and another option would be to do more scans. However my mum was awaiting a shoulder replacement and can't lift her arms much which they said could be a problem to do the scans. Other than that they don't think there will be any treatment. They have said they are quite sure its lung cancer. Has anyone else had a similar experience and what other options can we look at to get treatment.
My husband had a mass on his right lung, they were very sure it was cancer, when he had his PET CT scan they discovered it was cavatating phenomena. His biopsy was then cancelled. Has she had her PET scan?
That's an interesting one.. I had problems with holding my arms up for most scans and the Biopsy , but after an aborted Biopsy we settled to take more pain killers , a relaxant and do the biopsy from the side. I was advised that Bronchoscopy was a safer option in my case but it was refused. It never ceases to amaze me how they still keep doing tests when there is no further treatment proposed. One option offered to me was the chance of a second opinion for treatment, I have possible bilateral lung cancer with an almost certain kidney cancer . So not sure what course they would offer, if any due to other health issues. But hope the info helps your mum in respect of the scans being done another way, I was also advised that the need for the arm up depends on where the tumour is in the lung. The other thing is which radiologist, they generally have their own preference for position. Good luck to you and your Mum.
mg20 I’m not far into my journey so can’t help with treatment options but I can share my experience of the scans. I had the PET scan and when I told the chap about my shoulders he told me to tuck my arms in and hands under bottom. It was fine. The scan was unaffected. I’m sure this would work for your mum. I hope a plan is in place soon for mum’s treatment.
Thank you for your suggestion , some medics don't take into account patients other health issues. Shows it can be done without arms in air. I was told with the lung they need the shoulder blade in a different position hence the arms being up . Have a nice day.
I've had to raise my arms above my head for CTs (although once when I couldn't due to broken ribs they got me to put the, at my sides with my hands under my bottom), but not for PETs.
If surgery isn't an option (and it sounds like it's not), then radiotherapy is sometimes used either on its own or in combination with chemotherapy. Whether radiotherapy is a viable option depends on exactly where the tumour is located and whether it's too close to important structures.
While a PET will tell them the avidity and extent of the cancer - and so the clinical stage - it can't tell them which particular type of lung cancer it is or the grade. For that they need a biopsy, which they probably hoped to get from the bronchoscopy.
It is more than reasonable to ask about the next steps, and you should have been told without having to ask. Even when there is no active treatment option, controlling symptoms to maximise quality of life is important.
I hope you are given some clarity soon.
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