Mums lung cancer

Hi Binijac, Thank you so much for your reply. It has helped me immensely. I am working from home while I get my emotions under control. By working from home I of course mean reading these forums (but avoiding reading elsewhere as I don't want to overwhelm myself about the future). This is very much new territory for us all here. I hope that a little knowledge helps me explain things to mum and my dad at least.

I wish I could go back in time when my mum first complained of shoulder pain. I wish the GP had looked further into other probably causes of the pain. I wish we had pushed back when a physio said it didn't feel like a frozen shoulder. I wish we had pushed and pushed for a scan on mum's hip. In the end, we went private for that as we were told of weeks and weeks wait for a scan on the NHS (not suspecting cancer at that stage). Even then, we had no cause to suspect anything wrong with her lungs whatsoever. Heindsight is a wonderful thing.

We're meeting with the lung specialists tomorrow so will take mum and dad there and see what we're facing.

I need to ask about a chair lift. Mum is downstairs as we have a medical bed from social care, a rotator and commode, and luckily the space for this too. Only a couple of weeks ago we were just looking at a handrail to help come down the stairs. Things have moved so quickly.

It's great to hear that other pain relief is available. My mum's comfort is my main priority, and the support to her and my dad. I hope that her morphine will help her. The Drs have mentioned a slow-release tablet in the future. At night, time between medication makes mornings hard I think.

My new mantra is 'one day at a time'. I've stolen it from this website I'm sure. There is a lot of wisdom here and I'm so thankful I have found it.

I do hope that your mum is able to get home soon and that the pain relief does its job. Thank you so much for saying hello. I will try to stay in touch as we continue this unfortunate journey.

You are not alone.

Hi

Yeah I know what you mean about emotions it just hits you it’s awful!!   I feel so angry with life at the moment i feel angry for anyone effected by this vile disease.      I’m just doing everything I can for my mum & dad and give them support on this journey..   It’s all any of us can do.    My mum is a very practical organised person butI I know she is putting a face on this for us all.   My dad just wants to keep my mum happy  with anything and everything but it’s so hard seeing your dad upset.  

I just live 10 minutes from them so am on hand for anything.   My sister just moved down to Manchester a month  before all this happened so is not as hands on but is in contact alll the time.  We are in Scotland. 

Yes the pain and mobility has been the most problematic fingers crossed this is being sorted with the pain team at the hospital it’s just been a bit of trial and error.  She is walking with a stick now but will be getting a wheelchair so she can be out for longer periods.     My mum has been put on morphine also and the patches on her hip.   They seem to be helping for now.     I hope your meeting goes well tomorrow.  Take care. 

Hi Binijac, I won't want to hijack this thread (because this is about you and your mum) so I've replied to my own thread in this forum with my own news. Unfortunately it is not good news. We are facing incurable (we new this really) but also untreatable cancer, with a prognosis of weeks not months for my mum.

Worried we will not be able to cope for her last few weeks at home, and worried for my dad for the forthcoming future without her. Wish we had more time to pack in a bucket list, trips, holidays, time, anything, but we have been robbed of this and what I thought were to be many years to come by this horrible horrible evil.

Oh I am so so sorry to hear this we are waiting for my husbands 1st biopsy doc said he has a mass on lung inoperable spread to lymph nodes. Every day seems like a year he's very depressed and worried quite snappy and nasty with me I understand but I'm hurting too feel so helpless life socks sometimes 

We were told that there is no point in a biospy at the stage we are at, hopefully one will be of benefit to you in terms of diagnosis and treatment and maximising your future time together.