So what's it like to have a lower right lobectomy? Here goes...

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To anyone whos' about to have this surgery here's what it's really like...

Tuesday 10th January
LOBECTOMY DAY
ONLY WATER IN MORNING, NOT EVEN THAT AFTER 6AM (expecting operation at 8am-ish)
Blurry day on morphine. Had a chest X-Ray but not sure when. Operation went well, keyhole, no need to switch it up to open surgery. VATS with just one incision in my side about 6" south of my armpit
Settled down in my recovery room

Wednesday 11th January
Out of recovery, into a regular room (same floor though)
Short visit from surgeon, my recovery is going well. The morphine has been taken away from me (just as well, I tried to use too much!)
Physio turned up for breathing exercises (coming again tomorrow)
On Oxycodone every 4 hours from now on (the nurse keeps forgetting though!) not for pain but to let me breathe...
Drain in my side needed its dressing changed (had started to leak)

Thursday 12th January
Drain tube still not out of me as planned, it's still dribbling, had X-Rays to find out why...
Good chance I go home tomorrow, so packed bag just in case so I'm not rushed
Physio again, just walking me up and down the long corridor. (No problem, but I get out of breath so easily, fixed long-term by gentle exercise like walking.)

Friday 13th January
The drain tube was taken out of my side (I didn't see, probably looked gross)
One last X-Ray to make sure all is okay inside me
Got checked over by the physio, I will need to do shoulder mobility exercises.
Sent home with drugs and letters for doctors
Back in flat at 4pm, had the taxi driver carry my bags up for a humongous tip
I managed to climb the stairs to the 3rd floor non-stop, but didn't half slow down towards the end and was well out of breath at the top, couldn't even speak. (Until I get fitter I'm almost housebound.)
Had a careful wash! First since I left flat (couldn't before, I was all plumbed in with tubes). I need to keep wound as dry as I can for 2 weeks
Continued with the Oxycodone at 7:15pm then 2 paracetamol at 9:45...
Had more Oxycodone at 12:00am

What else?
I had a chest X-Ray every day, results of which will all go online in February
I was on oxygen all the time, but got weaned off the last 2 days
I get out of breath really easily now, but that will improve over time
Pain isn't a problem, I get the occasional twinge but that's all. It's more that the pain killers allow me to breath deeper and so get out of breath less
Occasionally I cough up some bloody gunge (gross!) - good, need to empty it out
On Saturday 14th the pulse-oximeter said 71bpm 98% so not too bad
Am using the step counter on my watch to keep an eye on my activity level, which needs to be gradually increasing day-by-day
I'll need to make an appointment with my GP to get the stitches taken out after a couple of weeks
Googled "Medical News Today - Shoulder Exercises for Bursitis" for good shoulder mobility exercises

Kind regards
Steve

  • Not say.the other text meant x

  • Hi - yes it is a VATS procedure. I have not had a biopsy but opted to go straight to surgery as my consultant and surgeon both think my nodule is malignant so best to have it out at this early stage. The nodule will then be biopsied together with some Lymph nodes which will be removed at the same time. That's when the waiting game starts I guess. xx

  • You better off not getting biopsy they tried biopsy the first time I had the cancer and collapsed my lung was in hospital for 5 days that was actually more painful that the vats  soo 2nd cancer never done biopsy just waited to they took it out along with few nodules. X

  • My vats was so straight forward I was realy surprised, my open surgery 2nd time was lot worse that's because they couldn't get in due to the other lobe being removed but cause mine like yours was early on didn't need any other therapies afterwards , breathing was not affected with the first lobectomy but 2nd op has left me with problems. X

  • Sorry to hear that your 2nd op has left you with problems and hope they will improve for you soon. Do you think open surgery was what made the difference as it sounds as if your 1st VATS op went well.  From from your experience of a biopsy I probably made the right decision not going for a biopsy first. As mine is a ground glass nodule the surgeon said it would be difficult to obtain a definitive biopsy, hence the decision to go straight to surgery which I am hoping will be as straightforward as your 1st op. Fingers crossed xxx

  • Yeah it was because of the lobe  removed b4 it in 1st op so they had to tug n haul a bit due to where scarring and where it had been glued inside  with the lobectomy  x

  • i remember the morning off my surgery ,and in a way i was glad because i had already known the date for 8 weeks ,so i had 8 weeks to worry about it ,i only told my sister and husband the date ,my 3 children were not told until 5 days before because i knew i could not cope with them being over emotional .that morning i was lucky the surgeon came to talk to me before surgery ,she saw i was weepy and gave me great comfort in telling me that she did this nearly everyday of the week and if i died on the table she would look really bad ,that made me laugh ,what if s are things we all think about but after she told me that ,i got it into my head what i was going to do to make myself better after surgery ,and i kept thinking that till i came round ,we will all be rooting for you Pepper ,

  • Good luck for your lobectomy Pepper x

  • Oops, that didn't go to plan...

    After my last post on Saturday 14th, things took a turn for the worse. At 9pm I strained too hard on the toilet. (LESSON LEARNED: THOSE MEDS SCREW WITH THE DIGESTION SO TAKE LAXATIVE EVEN WHEN THAT IS NORMALLY A NO-NO!) Everything is swollen from face to feet, I feel terrible, I look like the Michelin Man. It's 9pm so everywhere's closed. Ended up with dialling 999 and got taken to hospital A&E.

    Being scooped up and taken off in an ambulance has meant I've been offline ever since, lucky to even have my phone (no charger). Finally got back on Tuesday 24th so I've been 10 days in limbo.

    So what had happened? I had burst the stitches that sewed up where my lobe had been - not recommended. All that swollen stuff was air escaped from my lung and trapped under my skin (no worries, it's starting to absorb and go away now, my skin feels like bubble-wrap.) What they did in A&E was put in a new drain tube to let the air out - bit of a struggle, needed as much brute force as skill (I know, I was awake for it) and despite the local pain relief not entirely discomfort-free.

    After that, back to the ward I had previously been discharged from for recovery. That 2nd tube must have been in there best part of a week, maybe longer? Hard to tell, I've been on meds and taking no notes. Anyway, eventually it stopped letting air out so my lung had re-sealed and the tube got pulled out (shorter tube than last time, so not such a big deal.)

    The wounds on my side seem to have stabilised enough for them to let me go home again. There's still a bit of weepage so I have to keep the area well clean and let nature take its course. They gave me waterproof patches to stick on if I want to shower but I'm not going out anywhere if my bubble-wrap feet can't get into shoes so no pressure to get civilised anytime soon.

    Silver lining: this time around I've been released with lots more useful stuff to take home with me...

    Kind regards
    Steve

  • Ouch!! That sounds horrendous Steve! Thank goodness you are back home and on the mend now. X 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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