New to all of this - adenocarcinoma

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Hi all. 

my father was diagnosed with lung cancer 2 weeks ago- found out since biopsy it’s adenocarcinoma in 1 lung and lymph nodes. 

wondering if you could share your diagnosis journey (it’s hard to know when things are taking too long? Or moving fast? Do we go private or stay NHS?) still waiting on bio marker results to tell us treatment plan. What questions should we be asking?

wondering if you could also share any medications or remedies for the cough. Luckily it eases when he lies down but it’s v irritating him in daytime. Did this ease with treatment? 

thanks for any help. 

  • Hi Iris,

    I was diagnosed with same cancer as your dad, click on my avatar for my "journey" from diagnosis to current chemo.

  • Hey sculptor. Thanks for sharing your journey and sorry you’re going through this. Have you got a cough and if so any tips for helping the symptoms? Has treatment eased it? Hope you continue to heal post surgery. 

  • Hi Iris

    Sorry to hear about your dad.

    Check on my profile to see my journey so far.

    I'm in Australia so we have a different system here, but I have chosen to go private.

    I've had no lung symptoms, so I can't advise you about coughs.

    Take care,

    Vivien

      

  • Hi again Iris,

    Like Vivien I had no symptoms originally so cant advise on your dads cough im afraid.

    Dave.

  • Thanks for sharing. I’ll keep an eye on your profile for updates and keeping everything crossed for your next scan xxx 

  • Thanks Dave. Wishing you all the best x

  • Hi there , click on my avatar to see my journey thus far … sorry I don’t have a cough so can’t advise on that … I’m sorry to hear about your dads diagnosis and hope he gets a treatment plan soon love Elly x

  • Hi elly. Thanks for the info and so sorry you’re going through this. Can you share your chemo RT process? My dads diagnosis very similar to yours with the 1 lung and lymphs. Scary times but hopeful for a plan soon once we get oncology appt. x

  • Of course , I had 6 weeks combined chemo and radiotherapy so chemo once a week and radiotherapy every day Mon -Friday … I had some issues week 2-3 when I had a reaction to one of the chemo drugs it was sorted pretty quickly though …, side effects chemo , days 3-5 each week some nausea and generally unwell and radiotherapy fine first 3 weeks then some burnt skin on chest and back remedied with creams , sore windpipe and fatigue which has continue after  treatment but I’m only  2 weeks out of treatment so to be expected … I was told 4/6 weeks before I started to feel any improvement and perhaps longer for the fatigue to ease … it’s a tough regime but doable …. I get an initial scan on Friday …hope this helps … but remember treatment plans and side effects are very different for everyone… . Elly x

  • Thanks elly it’s really helpful for me to see what others have experienced. Wishing you all the best with the scan results xxx