Non small cell lung cancer with 2 lymph node involvement

Forgot to mention the initial tumour is 4cm in size in upper right lobe 

Hi palmy 5 sorry to hear you have it back i am stage 4 lung upper left lobe with adrenal and aortic lymph nodes in to the mix, i have been on the saron trial that has been nearly two years now infact my last treatment is 1st December,  I've started on immunotherapy then had a break while i had high dose targeted radiotherapy and I've seen my oncologist last week and been told no visible signs of cancer only scarring however i am in the knowledge i am still stage 4 and it will come back and bite me dime day. Personally i found all the treatment fairly ok just fatigue is my bug bare but its a small price to pay in the bigger picture of things we are all different and it affects us in different ways even if it the same type and stage of cancer.

All the best with your journey keep positive it helps .

Darren

Thankyou,so it isn't the death sentence it seems because I'm totally scared stiff about it all...prostate cancer was a doddle compared to this

Its differnt for us all i guess its down to how our bodies make use ofcthe treatment given , i have had mu thyroid destroyed and gained diabetes from the treatment but again it is a small price to pay and managed most of the time .

You will have loads of support on here ask about trials the saron one I've been on works for me so look in to it.

All the best 

Darren

Thankyou

Hi Palmy

I'm also nsclc with the main mass in right lobe with some lymph nodes and bone metastases involved

I've had chemo, immunotherapy and radiotherapy so far.

My radiotherapy took place over a week, 5 days back to back 

The rest of the treatment is once every 3 weeks, depending on bloods being ok each time. They then give you a break after about 6 - 8 cycles. 

Not sure what happens after that.  I only started this journey in May so don't know all the ins and outs. 

Same here.

Am now pre diabetic and its messed with my thyroid. The immunotherapy seems to have a go at my kidneys and liver for the fun of it as well.

I've had to have doses reduced and delayed and be put on high dose steroids while things go back to normal.

It's annoying, because I've had a good response to the immuno (significant decrease in size of tumour).

If only it would leave the good bits alone!

It's a worry, as im scared that f it keeps happening I won't be able to continue wirh the immunotherapy.  And then what other things can they try?

Hopefully if that hapoens there are other (less harsh) immunotherapyies they can try.   (Am on pembromizulab at the moment.)

X

Hi palmy 

my partner was diagnosed with lung cancer stage 3B in his right lung , he’s had 3 rounds of chemotherapy alongside immunotherapy , he’s had a couple of hiccups along the way but mostly he’s been really well.They also hope to shrink it to a point where he could have radiotherapy , but after scans his cancer is stable , he has another round of chemo on Tuesday then a review to see how the cancer is now as his last scan was a few weeks ago .

people handle chemotherapy differently but the nurses are amazing .

Good luck with your treatment 

Bless you I’ve just been told that my lung cancer has grown and gone to lymph nodes, I start chemotherapy next week with Immunotherapy I have bee a nervous wreck over the last few days.

Hi there I’m going to be on the same plan combined chemo radiation - radiotherapy every day Mon - fri and chemo every Tuesday for 6 weeks also with curative intent …. Two chemo drugs being used … and I’m not staying in hospital , travelling each day , bit daunting isn’t it ? Elly