Lung Scarring post SABR Radiotherapy

HI Bellsndy7/Dinger. I like the idea if a nebuliser and if things do not improve will ask oncologist/GP.

I do loads of walking and it can be all fine and then I get into coughing fits when I think I am going to spit my lungs out. 

Indeed brain mets are a concern especially with the EGFR mutation. I have had loads of récents aura migraines without the migraine and eye test is OK. Could be a reaction to chemo immuno which I am still on...?Chantie 

hi Ruby

I have a tumour adeno carcinoma in the same place , underwent RT and chemotherapy together -called radical treatment., that was in December 2018.

regarding scarring i'm afraid it goes with the treatment- radiotherapy, It has got to be managed, i use a small nebuliser to keep my lungs moist, my GP prescribed Carbo cictene to help with phloem. At the end of the day your body is trying to heal the scarring  causing a lot of mucus.

taking medication that has expectorant in it will help. i  swim to try to exercise the lungs and  i feel this helps. yes fatigue ios probably part of your everyday life now, if you need a kip, have a kip i do most days for half hour or so. Weight can be an issue as you can become  more sedentary, so exercise if you can by walking  a little each day.

yes good luck to us all . Dinger

Hi Chantie ,

good luck with the nebuliser if you decide to use one, i find that the coughing fits are not so harsh because i use the nebuliser, and it's important not to let the mucus build up so better out than in.

Dinger

Hi Dinger, I will consider a nebuliser but have very little mucus. The cough has always and is still very dry and unproductive so not sure if that would help. Have seen a physio to look at lungs stretches and breathing exercises but so far no improvement and coughing is more or less constant when I move. Do find difficult me who loves long walks. Have to stick to flat at moment. Chantie

Hi Kegsy, my oesophagus has lost a lot of its stretch in as much that I often feel like food is stuck and I have to wash the food down with water. 
it is now 18 months since I had chemo and 60 sessions of RT on my chest and neck. 
luckily though my saliva has improved greatly.