I am due to begin paclitaxel as a weekly treatment in January. I'd like to know how best to prepare myself physically over the next 5 weeks. My weight is bordering normal to underweight and I find it hard to put on weight. I'm an active mum of three young children. If I'm sick on the chemo I'm figuring I'm going to lose weight so should I try to build up now? Will I remain able to do the school run sometimes, will I be active at least some of the time. I think I'm going on a weekly cycle as I was very ill on a previous chemo. I'd really appreciate others perspectives on what to expect
Hi Moonkeogh I am sorry to hear that you will be starting chemo soon, having small children to look after as well, I can understand your concerns. If you are unwell on the chemo, and do lose weight, there are high calorie drinks you can have from your GP which may help.
Everyone is different on chemo so is difficult to say how you will be. It is quite usual though to have a couple of days of feeling unwell, followed by days of feeling better. I hope you will have some help at home with the children whilst you go through your treatment? x
Hi Chelle, thanks for replying to my post. I am worried about being unwell every week. If this were a course of treatment to try and beat the cancer I would be head down getting on with it. But this is just something to control the growth, so basically I'll be on it until I die. Do I want my children to see me sick every week until the end? I'm 100% active now, I know it's the way I will go but it's so hard to gear myself up to be 'treated' with a drug that will make me sick and severely compromise my immunity to other threats to my health, one of which is looking pretty threatening atm!
How do you maintain yourself on chemo? Do the side effects get progressively worse or level out? I'm so active now, the thought of not being so kind of means my life is ending as soon as I begin the chemo. If I can't look after my children then what's the point?
Hi Moonkeogh I am not on chemo myself, but the treatment I am on I will also be on for the rest of my life. The side effects of my treatment includes severe migraines which put me in bed for days on end, mobility issues, dry itchy skin, fatigue and weight gain. In a way it is not my cancer that effects my life, but the medication I am on to control the sarcoma. Without these meds my tumours will grow, so I have adjusted to my new way of living.
Can I suggest you also join the living-with-incurable-cancer-forum. It really is a very supportive group for people like us who are incurable but treatable, and there are people there that are on long term chemotherapy. You can join in the same way you have here in the lung group, and start a post, you could even copy the post you have here and see if anyone there is on paclitaxel. I am also in the group, so will be sure to welcome you. xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007