Advice please

Hi Mexico1 welcome to the group, but sorry to hear about your friend. It must be very difficult for her to see other people on treatment coping better than she is. Everyone does react differently to treatment, and no 2 people are the same. Has she spoken to her team about this. I don't know if your friend has been prescribed anti sickness tablets? 

I am so sorry, it must be very difficult for you to see your best friend going through this.  I hope you have someone to support you whilst you are supporting your friend. There are a couple of support groups on the online community you can join, where you may be able to connect with other people who are in a similar situation to yourself. 

Family and friends 

Carers only

You can also call the Macmillan support helpline for information and advise 7 days a week from 8am until 8pm on 0808 808 00 00 

Thank you Chelle, she has got anti sickness tablets but the make her sleepy too, she is seeing oncologist on Monday and she will see if there is anything else they can give her, I think it is actually the morphine that is making her sick and sleeping so don’t know what else they will be able to give her. It feels good though to be able to ask questions on this forum and not be made to feel a bit stupid or a nuisance 

Ah yes morphine makes me terribly sick.  I hope you feel you can come here anytime. We don’t always have the answers, but can share our own experiences. Sometimes just putting your thoughts down into words does help, so please know we are here to listen xx 

Thank you so much for the support xx

Hi Mexico1

So sorry to read how your best friend is struggling with the immunotherapy side effects at the moment. I too am having immunotherapy every 3 weeks (Pembrolizumab / Keytruda) and had 2 cycles so far with 3rd next Friday. Only side effects so far have been mild nausea and Tiredness thankfully. I can use Morphine due to allergies so pain killer wise, I take paracetamol and tramadol. It may be the morphine doesn't agree with her. As stated by others, everyone is affected differently. 

I agree with others, get her to talk to the medical team, ideally sooner rather than later about how it's affecting her, things will then be dealt with as early as possible. She will have been given an emergency number to call. If she is being sick, she will begin to become very weak, then tiredness will then become even worse. 

Hope she picks up soon. Let us know how she gets on. 

Sally 

Hi Sally, thank you for your reply. I have just read your blog about your journey and it is very inspiring to read.

My friend hasn’t had any other treatment except for the immunotherapy, her breathing hadn’t been too bad until they did an Ebus and managed to puncture her lung which wasn’t picked up for a couple of days which ended up meaning a 2 week stay in hospital with it being drained and then having to be inflated again, she lost some faith in the hospital after this, but she was there yesterday, they have give her some liquid paracetamol, she is to stay on the morphine.

 I apologise for such a long post, but she won’t talk to anyone else and I am trying to find out as much info as possible.

Good luck in your journey xx