My husband had his first combined chemotherapy with immunotherapy in July with few (so we thought) side effects however last week after having his blood tests in preparation for a second cycle he was called back to the hospital urgently to be told his LFT’s were dangerously high, which is a rare side effect of immunotherapy. His treatment has been cancelled and he is on steroid treatment to bring down the levels, he has also had an ultrasound scan of his liver and has twice weekly blood tests.
This setback has really upset him as his lung cancer is inoperable and not curable so he was really hoping the chemo/immuno would slow down the cancer and now is worried that he may not be able to resume treatment for some time (if at all). Has anyone else had this liver toxicity and if so what happened regarding further treatment?
Hi Grasan sorry your post has not been answered yet. I do not have any personal experience with this myself, but wondered if you wanted to ask the question in the ask_a_nurse forum.
It was really helpful to us also when you sent your message as we didn’t know anyone else who had this rare reaction to the Immunotherapy.
Barry has had one face to face appointment with the oncologist but his last one was a video call which he didn’t like as he’s not good with technology 
so I tend to take most of the phone calls etc and his medical team are fine with this so I am able to ask questions on his behalf and they tell me what’s going on. Would your mum let you help her with asking questions?
Like a lot of people in this awful situation we think of things we want to know and then forget when we are speaking to the lung cancer nurses or the treatment team so now we have started to keep a sort of diary where we write down how Barry has been and any questions we want ask.
His cancer is also in his left lung and has spread to his lymph nodes and is also in the lining of his lung. But he actually looks amazingly well despite this, he even looked fine when he had the liver reaction!!! He’s had a bad chest infection recently which has made him even more fatigued than ever.
I struggle some days emotionally and find it difficult to stay positive. Our daughters are grown up and married and we have a four year old granddaughter and Barry gets quite upset thinking he may not see her grow up. But we have to keep trying to live as normal a life as we can.
Message me again if you want to as I find it helps me just to “talk” via messaging as I don’t cry as much when I’m “talking” in messages and if I do then no one sees me.
love Grasan
