Immunotherapy

FormerMember
FormerMember
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Im on a different therapy called nivolumab im not sure the spelling is correct I had my 1st scan after 3 months and they gave me the best news considering I was given 6 months without treatment they said there was no new lesions and the ones that were there had slightly reduced in size so all ive done is hit the reset button and said ok its another 6 months I have.... I know I've been told its not curable but I just want to make it to my daughters wedding in March apparently I get scanned every 3 months so I'm due another in September so just have to see how it goes expect the worse but hope for the best I just keep getting more tired as the weeks go on my next therapy session is tomorrow I get it every 2 weeks im not sure what else to say how does anyone cope I'm not sure to take it as well we are all going to die at some stage and we have been given the opportunity to plan for it where as some don't I have meltdowns every other week or maybe sometimes more but I prefer to have them on my own does anyone else feel like this ...is it normal?

  • FormerMember
    FormerMember

    I feel just like you. I was diagnosed 3 weeks ago and start immunotherapy on Friday.

    I've cried more than I thought was possible, then I have days when I'm super positive...only for the next day to feel like I'm 5 years old and so scared.

    It's horrid...our lives have suddenly been turned upside down but we have to have hope.  Life is worth fighting for and we've got to try and be strong and get through this. There's so many new treatments and discoveries and we just have to hang on in there. Xxxx

  • FormerMember
    FormerMember in reply to FormerMember

    I don't want to upset my family to show how scared I am because they are dealing with it aswell they keep saying to talk to them when I'm not dealing with it but they have their own lives and problems and I just can't do that to them so at times well most times I feel so alone 

  • FormerMember
    FormerMember

    I feel exactly the same. Ihad this immunotherapy in combination with another and it helped my kidney cancer. (I have primary lung and kidney) but walking this tightrope is hard

  • Hello Madirish, love the name!  I think it's perfectly normal to have off days. I have days when I'm quite upbeat and the next I want to be alone and everything gets on top of me. I'm sure it's not healthy to sit and think about things we have no control over but some days I can't wait to have time on my own.

    That's great news about your scan result and to see a slight reduction after only 3 months is fantastic. It must have given you and your daughter a real boost! Long may it continue.

    Best wishes

    little-fi x

  • Hi Elsie,

    It's still very early days for you and it will be on your mind 24/7. It was with me initially but gradually you get to grips with it and accept it. You seem to have a positive attitude which is great!

    Good luck with the immunotherapy tomorrow,

    All the best

    little -fi x

  • FormerMember
    FormerMember in reply to little-fi

    I started diamond painting and it's so mind numbingly repetitive but honestly gets me out of my own head so I just don't think of anything I'm sitting waiting to be called in for my immunotherapy atm I just cant wait to get home had bloods and assessment 9.30am this morning its my long day xx

  • FormerMember
    FormerMember in reply to little-fi

    Thank you so much xx