SCLC - How are you all doing?

Glad to hear from you and that Dad and all complete on the Chemo - Mum doing ok and was offered two further chemo - so six in total. She took a chest infection just as she received her 5th one, so floored her.  They have offered her another Radiotherapy in the breast bone area but that will complete her treatment.  She isn't a candidate for immunotherapy.  Once this lot is complete that is her and will scan periodically to check progress but as we know SCLC is aggressive, so a given it will return.  I know that she will get to Christmas, which is definite bonus.

One day at a time

Thinking of you both xx

Terri xx

Just finding this thread Jan 2022. I’m in the US. My mom got a Dx of SCLC early November, did radiation to lung & lymph nodes, as masses were found via bronchoscopy. During her round of radiation she had back pain & they found a spot on her spine during PET scan so added radiation to that area. She developed esophagitis during her radiation treatment which started to limit her eating & even drinking. Due to her age (77), oncologist wanted her to have some time to recover a bit & started her chemo 1.5 weeks later. She was doing quite well at that point, but I was noticing her not so steady on her feet. She was no longer comfortable driving herself to appointments.That was fine, as I planned to bring her back & forth to chemo anyway. Doc planned just two sessions to go a bit easy on her & she how she tolerated Tx. She seemed to be doing great, but all her side effects from radiation & chemo seemed to hit her all together & she could barely walk the night after her 2nd chemo session. We had to have her admitted to the hospital for dehydration & malnutrition. A week and a half in the hospital to get stabilized & then discharged to rehab. She had become neutropenic & low potassium while in the hospital. Five days into rehab & her WBC were increasing at a rate that they suspected infection. Back to hospital - she was septic & they found pneumonia. A couple bouts of hospital delirium in the first couple of days, close watching of her heart (rate had been elevated since first hospital visit & prevented her from doing much PT or OT while in rehab, two transitions for low platelets and H & H, draining of fluid off her lung, struggling to eat (probably food fear/aversion from the pain she’d get from the esophagitis. Lots going on! She was bed-ridden with little to no PT and in the hospital 2.5 weeks. The hope has been to get her strong enough to be back home, as independent as possible, and get more Tx. She’s back in rehab, and some days are better than others. Physical therapist sounds very cautiously optimist that she’ll make progress. She can barely maintain her balance sitting up at side of bed, and can’t bear weight on her legs for more than 20 seconds. I can not wrap my head around what things might look like for after discharge. I don’t know how realistic it is that she can manage at home with anything less than 24/7 care (which would probably bankrupt her - remember I’m in US). My sister is out of state & so I’m only caregiver. Yesterday I was in a really bad place thinking about everything. Hoping for some decent progress with PT & improvement on her eating which is still bad. 

Such a long “introduction” post! Sorry! I haven’t food much about SCLC since it’s rare. And I do get some hope from some of the stories here. Not sure  what the next couple of weeks will hold. It’s very concerning that she only managed to get one round of chemo in thus far & I know SCLC is so aggressive.