Hello,
my mother has a carcinoid tumour in her lungs. We are waiting for the operation date at the moment and I guess to keep myself busy I am trying to prepare the post-operation period as well as possible.
I have looked at shower stools for now and how to make her room most adapted for rest.
I wanted to ask for tips on what makes spaces adapted for rest and recovery? What are things I might not think about? She will have 2/3 of her lung removed, so I am especially interested in the experiences of others who have had similar operations. (I know it can depend a lot from one person to the next, all feedback are greatly appreciated as we just want to be as ready as possible).
thank you!
Hello, I had operation to remove a tumer on my lung 4 weeks ago but unfortunately it wasn't a success. But the operation is the same as your mother is going to have and I wish her all the luck. I had to do alot of breathing exercising and shoulder roll to stop my shoulder going stiff and walking as soon as I could. Hope all goes well
It is important to follow instructions given for exercise, walkng etc. as Muffin break says, even if your mother doesn't feel like it (and if no instructions are given ask for them). Don't be tempted to wrap her in cotton wool but obviously don't let her overdo things, I didn't feel much like any of the shoulder exercises or walking but soon got into the swing of it and made a quick recovery.
I hope surgery goes well and she recovers quickly and fully.
Hi, I had a lobectomy last year. I was recommended to sleep propped up at first so bought a foam wedge cushion to use under my pillows which helped. I agree about building up activity from the start - the first few days I couldn't walk far but it soon built up. Otherwise I didn't find the recovery too bad - better than when I've had abdominal surgery in the past. Good luck to you and your mum! x
I have had twoseparate surgeries in the last year, one for breast cancer mastectomy last August and more recently the removal of two secondary breast cancer nodules from my right lung via vats surgery back in March, one of the best things I bought for both was a large v shaped pillow and sit in a high backed chair that supports your shoulders I also use the pillow to sleep with as well as it supports your upper back. This might be useful for your mum
Mum will need to keep elastic stocking on as she won't be very mobile, take advice as for how long I had mine on for nearly two months had a few pair , they are a bugger to put on but worth it, to stop blood clots, also exercise feet and legs in bed as much as is comfortable again take nurse advice, ....take all pain relief as prescribed, probably need a laxative as well because codine is a nuisance for making you constipated lol, not good reading but nessaccery needs to be said lol...I slept sitting up for a few days loads of pillows, I couldn't walk down stairs so walked around the bed a few times every time I went to the loo , this was very tiring but had to do it.......I had half left lung removed had 7cm x 5 cm tumour sitting behind my heart it was hiding lol, also one lymph node removed this was all done 29 October 2020...advise her she will get there and keep strong , hope my straight advice helps regards margie xx
Get in touch with Occupational Therapy they will provide aids and adaptations free of charge
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007