Advice Please

Hi Gem65, sorry you haven't had a reply yet. I just wanted to welcome you to the group, although sorry you find yourself here. 

I am glad that the targeted therapy is going well and has helped to ease the back pain. Although I do not have any personal experience with your type of treatment, I would personally be wanting to go for the radiotherapy to throw everything at it, as you said. Of course this is a personal decision, and I hope someone who has had experience of this will be along soon to share their journey with you. 

Take care

Thank you for your message really appreciate it. Hoping the short term side affects will be long term gain but would be great to hear of any one who has experience of radiotherapy on spinal area. 

When diagnosed (NSCLC) I was given radiotherapy on a tumour on my pelvis which caused me no discomfort except for one bad dose of diarrhoea and tiredness and WBRT (whole brain radiotherapy) which I don't think has caused any side effects (I've always been a bit mad!). Mine  was before chemo, so not when on targeted therapy. I had five sessions in five days. Hope that helps.

Hi Agnieska thank you so much for your reply. 

I've just read your profile, pretty amazing and for some one just starting this road good to see how long you've been on it bumps and all.

I've just started osimertinib had a few side affects so far. Also have denosumab injection for the bones. 

Hiping

Sorry sent before finished... thanks again for taking the time to respond really appreciate it

Hi, I haven't had any experience of radiotherapy but I'm also on osimertinib. There's an 'EGFR positive UK' Facebook group which might have someone who's experienced both, if you're not already a member of it? Of course, given that I'm a bit late replying, you've probably already made your decision. I hope it's going well!