Hello :)
I was just wondering if anyone else had experienced their MRI scans showing and increase in T2 FLAIR around a previous glioma resection.
I was first diagnosed in 2012 and had an awake craniotomy with full resection of a grade 2 oligodendroglioma in my left frontal lobe. Aprox 4 years after this my doctor said he had noticed a slow gradual increase in the T2 FLAIR around my resection site across my monitoring scans, which they suspected could either be gliosis/scarring from my surgery or low grade tumour recurrence. They suspected it was most likely gliosis but the only way to know for sure would be to do another resection. I opted for this as, at the time, this felt right for me. During the surgery they were able to confirm that it was the right choice as it was recurrent low grade tumour.
It’s 4 years on again and I am in the same situation, slow gradual increase in T2 FLAIR since my second resection and again the doctor has said they think it’s more likely gliosis than tumour but no way of knowing for sure. I am now 28 and a lot less willing to jump into another surgery so I am very happy with remaining on watch and wait!
I am just curious if anyone else has been in a similar situation?
Thanks for reading and thanks in advance for any responses!
Hi HollyW24 and a very warm welcome to the online community
I can completely understand your wish not to have more surgery if you don't need it but I guess you have to be guided by your hospital team.
I have not had the same diagnosis as you but I noticed that your post hadn't had any replies. I typed 'FLAIR' into the group's search bar but unfortunately didn't find any previous posts from anyone mentioning this.
When you have a minute it would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
