Please please someone reply to me as im so worried ..my beautiful husband is 49 yrs old, back in Oct 1st 2017 he was diagnosed with ewings sarcoma on d brain, he had a op and 60% of tumour was removed followed by chemo and radiotherapy, he now has MRI and Ct scans every 3 months he is back working playing golf and feels fantastic, but last scan in Aug showed 4 nodules in his lungs measuring cm (10mm) each, his oncologists offered him no treatment plan basically told him to go home and enjoy the time he had left, ye can imagine we were left devastated, but then l decided no im not accepting this l contacted the oncologists he was under for his radiotherapy he ordered a PET scan then we went for results, he told us pet scan showed no abnormalities anywhere in the body , he also told us d nodules that we were originally told were cm (10mm) were measuring between 3mm n 5mm but he said they cant say if its cancer or not , 1 of d nodules was d size of pin head , he wasnt concerned n we left happy, but now im confused n angry at d 1st oncologists and as time goes on l cant stop thinking about it, my poor husband is all over d place, please has anyone experienced this
Hi and welcome to the online community
I'm sorry to hear how confused and angry you and your husband are having been given too different versions of your husband's results. I think that I would feel the same too!
I haven't had the same experience but I noticed that your post hadn't had any replies and I wondered if it would be better if you joined and posted it in the secondary lung cancer group. Another group that might be useful for you to join is the bone cancer group as that also covers Ewing's sarcoma.
To join both or either of these groups just click on the links I've created and then choose 'join this group' on the pages that open. You can then copy and paste your question from here into a new post there.
If your husband hasn't done so already, it might be an idea if he spoke to his CNS for clarification about his results.
When you feel up to it, it would be really useful if could pop something about your husband's journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
