New diagnosis....where to start?

FormerMember
FormerMember
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Hello to you all. My father in law, who is 90, has just been diagnosed with pancreatic cancer with secondary liver cancer. I didn't know whether to join this group or the one for pancreatic cancer, but chose here.

I'm hoping for some advice with regards to how we can manage things in the future.  He lives in the next county to us and has been diagnosed in hospital there.  He's just been sent home from hospital, they said they cannot operate as his primary cancer has spread. They thinking about chemo as the cancer has not yet spread to his lungs, but I doubt my FIL will have that as apparently it will make him very I'll and not prolong his life by much. He is in some pain, but that is currently being managed by morphine which seems to be working.

He lives on his own, but only 4 doors away from my husbands brother (his other son) so for now, he can manage in his own home. So my questions are: as the hospital are talking about palliative care, how is that out in place as he's been sent home with no information.

Also, thinking ahead, if any care in his home is put in place presumably from his GP, will we be able to transfer that help/care to us here as he will have to live with us when his condition worsens.

Finally, is it possible to manage his pain at home? I don't know what to expect with regards to pain  management as prior to being admitted to hospital he has been at times in agony.

Just don't know how to set things up with the fact that he will have a change if address during his illness.

Sorry for all the questions and thank you in advance if you can help.

  • Hi treecol77, welcome to the community, tho I'm sure you'd rather not be a member.I suggest u join several groups -

    Pancreatic cance, and  Family and friends. Once your father in law is nearer u, u could join the Carers only group as well, if u wished.

    Many of your practical questions are best answered by ringing the helpline on 0808 808 0000, 8am to 8pm, 7 days a week .

    You may find your local hospice offers a hospice at home service - quite a few do these days - in which case they could sort out pain relief at home.

    But I digress, call the helpline n ask the questions you've posted here 

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember

    Hi my partner was diagnosed with pancreatic and secondary liver cancer too. Inoperable. He was diagnosed mid May and was told he could have as little as 2 months without treatment. They deemed him strong enough for chemo. Be sure you are prepared for how chemo can effect the body. My partner got complications from his diabetes,  had mini TIAs ( mini strokes) and also DVT . He has suffered from terrible sickness on occasions and at one time couldn't eat or drink for a week.  My poor man is now in a permanent sleep . I am just waiting for him to just pass gently away at any time. Admittedly he has lasted longer than 2 months but he hasn't really had quality time. Please ensure your father in law  is full of strength as the treatment harsh. But the pain did subside at one point and has only returned very recently.  So not sure if chemo helped or my partner's pain threshold very good. It would be district nurses and a local hospice that would be caring for you FIL . ( if there is a hospice nearby) carers will be funded by the local council.  I have Marie Currie nurses to watch my partner over night , so I can try and get some sleep. There is help out there . His GP should point him in the right direction.  I hope i have been of some help. I may not reply too quick as this is a very difficult time for me x daffas

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you both so much for your replies. Daffas my heart goes out to you. My friend whose dad died of the same says it was the chemo that ended his life because he developed gangrene in both legs as a direct result. Within 3 weeks of having 2 chemo treatments he was in hospital with complications from it. I don't think my FIL will go down that road. 

    I will call the help line tomorrow as I have so many unanswered questions. Going through his discharge papers, there is very little info so I don't know if his GP will be in touch yet or what will happen. All seems a bit odd to me. But again, thank you.