Liver Cysts

Hi there,

I have two liver cysts. One is 4.5cm and one is 4cm and so far I’ve been told there is no treatment and that if they become very painful I might get surgery.

are your cysts malignant? What treatment are you having please?

kindest regards,

Louli x

Hi,

Mine are malignant and I have been getting treatment Folfoxiri. 

Are your cysts malignant or ok?

Thanks for your reply,

Hi SiCoTo,

thank you for your answer so quickly. I haven’t had biopsies and they say they are common and some can grow to 15cms. So they said I’ve nothing to worry about but they can change to become malignant. 

May I ask how you found out you had them and why are they called cysts? They have become quite painful and I can hardly breath at times with it. My gp has referred me to the local Liver team but the wait is over a year!

kindest regards,

Liz

So I had a PET scan that showed the mucin inside the cysts were cancerous. 

I think they are also called lesions but I'm not sure.

Sorry to hear that they are causing you pain, I don't have any symptoms which is strange. 

Thank you…. I am so sorry you have this and I’m wishing you all the best with your ongoing treatment.
Much love,

Louli xx.